A you know I have been trying to get re-housed and the MS nurse hs written a letter to support my request. She sent a copy to me and I was a bit shocked to see that she had written that in her opinion I am borderline secondary progressive. That is fucking scary.
She has never said anything like that to me but I have been using a chair since august on and off. Have never fully 'remitted' from a relapse in well over a year now, maybe 18 months. I have just had another relapse as I lost my baby quite late and a combinatoin of losing the baby and the general aneasthetic for the D&C triggered it. My balance is awful, I can't pick up my legs and walking is pretty difficult.
It's just a very scary and upsetting thing to see. I don't know if she means it or if she is just writing it to help. Either way I need rehousing as I am no longer safe on stairs and can't shower withoiut my husband.
Secondary progressive??
Mrs George, I am so sorry to hear about the loss of your baby, that must be so hard to cope with let alone dealing with the MS.
Nurses/Dr's I think make judgements and they don't really know what classification you are with MS. Heck I don't even believe in the classifications as people have managed to heal themselves from SP/PP which is meant to be impossible. I know myself that I fit into RR/Benign and Progressive MS so please don't let what the nurse has written upset you further.
If you want to hear of a story of a lady who managed to overcome SP MS please read about Terry Wahls. The advice she gives on nutrition is great plus she uses some electrical stimulating machine which she swears by.
Have you checked out the CCSVI board yet?
x
Nurses/Dr's I think make judgements and they don't really know what classification you are with MS. Heck I don't even believe in the classifications as people have managed to heal themselves from SP/PP which is meant to be impossible. I know myself that I fit into RR/Benign and Progressive MS so please don't let what the nurse has written upset you further.
If you want to hear of a story of a lady who managed to overcome SP MS please read about Terry Wahls. The advice she gives on nutrition is great plus she uses some electrical stimulating machine which she swears by.
Have you checked out the CCSVI board yet?
x
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