No more Tysabri, starting Copaxone, will wait for Cladribine

If it's on your mind and it has to do with multiple sclerosis in any way, post it here.

No more Tysabri, starting Copaxone, will wait for Cladribine

Postby ewizabeth » Tue Dec 01, 2009 6:49 pm

I just spoke to my MS neuro and I'll be starting Copaxone again as soon as the insurance approval comes through and they send it out to me.

I did ok on it and I can take it until Cladribine is approved.

It wouldn't make sense to start Tysabri again for a short time then have to take a drug holiday before starting Cladribine.

I call tomorrow to get the shipments of Copaxone set up and ok'd with my insurance.

So, no more Tysabri for me and I think this is a good plan.

BTW, he thinks Cladribine will still be approved in 2010 but maybe not as soon as he had hoped.
Take care, Ewizabeth Previously Avonex, Rebif & Copaxone RRMS ~Tysabri, 31 infusions, ended 9/09. Starting Copaxone 12/09, waiting for Cladribine to be approved in 2010.
User avatar
ewizabeth
Family Elder
 
Posts: 270
Joined: Fri Jun 25, 2004 2:00 pm
Location: Near Chicago

Advertisement

Postby Lyon » Tue Dec 01, 2009 6:52 pm

...
Last edited by Lyon on Tue Jun 21, 2011 4:24 pm, edited 1 time in total.
Lyon
Family Elder
 
Posts: 6063
Joined: Wed May 03, 2006 2:00 pm

Postby ewizabeth » Tue Dec 01, 2009 7:05 pm

Yes Bob, I had 31 infusions and I just didn't feel good taking it with all the new PML cases cropping up here and there. Copaxone stings like heck but it works ok for me.

There's been a setback with Cladribine since they somehow messed up the application with the FDA but it should still come out in 2010 sometime. (At least I hope so!)
Take care, Ewizabeth Previously Avonex, Rebif & Copaxone RRMS ~Tysabri, 31 infusions, ended 9/09. Starting Copaxone 12/09, waiting for Cladribine to be approved in 2010.
User avatar
ewizabeth
Family Elder
 
Posts: 270
Joined: Fri Jun 25, 2004 2:00 pm
Location: Near Chicago

Postby Lyon » Tue Dec 01, 2009 7:18 pm

..
Last edited by Lyon on Tue Jun 21, 2011 4:24 pm, edited 1 time in total.
Lyon
Family Elder
 
Posts: 6063
Joined: Wed May 03, 2006 2:00 pm

Postby Dejibo » Wed Dec 02, 2009 5:47 am

welcome back to the copaxone cutie club. 8)
User avatar
Dejibo
Getting to Know You...
 
Posts: 10
Joined: Sun Nov 22, 2009 3:00 pm

Re: No more Tysabri, starting Copaxone, will wait for Cladri

Postby RuSmolikova » Wed Dec 02, 2009 7:22 am

ewizabeth wrote:BTW, he thinks Cladribine will still be approved in 2010 but maybe not as soon as he had hoped.

Latest news:
http://www.msrc.co.uk/index.cfm?fuseact ... ageid=1629
User avatar
RuSmolikova
Family Elder
 
Posts: 161
Joined: Thu Nov 01, 2007 3:00 pm
Location: Prague

Postby ewizabeth » Wed Dec 02, 2009 8:51 am

Lyon wrote:I've never mentioned it to anyone but if Jamie's MS progressed, Cladribine is what I'm most interested in of the options to be available in the near future.

Her neuro in the Tovaxin clinical trial was trained by Kurtzke at Georgetown and the first thing she told us, almost seemed to be bragging, was that, of her patients on Copaxone she had never had one progress to the wheelchair. That always seemed impressive for some reason. I should have asked her what the hell it meant exactly.


And it has a long safety record too. They also sometimes use it alongside Novantrone for aggressive MS, starting with Novantrone infusions then follow up and stay on Copaxone (I think that's how I recall it.)

The only bad thing for me is the skin dents but I can live with those for another year or two if I have to.

I have more fat than the last time I took it so maybe that won't be a problem as much this time. :oops:
Take care, Ewizabeth Previously Avonex, Rebif & Copaxone RRMS ~Tysabri, 31 infusions, ended 9/09. Starting Copaxone 12/09, waiting for Cladribine to be approved in 2010.
User avatar
ewizabeth
Family Elder
 
Posts: 270
Joined: Fri Jun 25, 2004 2:00 pm
Location: Near Chicago

Postby ewizabeth » Wed Dec 02, 2009 8:52 am

Thanks Dej. :)

Thanks for the info Ru. I hope it isn't something that will delay it for too long. They really messed up though because now they might not be the first oral med on the market.
Take care, Ewizabeth Previously Avonex, Rebif & Copaxone RRMS ~Tysabri, 31 infusions, ended 9/09. Starting Copaxone 12/09, waiting for Cladribine to be approved in 2010.
User avatar
ewizabeth
Family Elder
 
Posts: 270
Joined: Fri Jun 25, 2004 2:00 pm
Location: Near Chicago


Return to General Discussion

 


  • Related topics
    Replies
    Views
    Last post

Who is online

Users browsing this forum: No registered users


Contact us | Terms of Service

cron