Hi, Robin! (Doing even better, I hope?)
Yes, I hear you.
The problem (well, maybe that's the wrong word), but another aspect is that the Mayo (as just one example) have been finding out that axonal damage is happening without inflammation being prevelant.
And inflammation is NOT a huge factor in progressive MS. I realize and totally agree with you that the majority of MS can be classified as RRMS, which does show proven evidence of the immune system involvement and much inflammation. The thing is, as you, me and Wesley have discussed before, is whether or not it's the inflammation itself causing the axonal damage? And it's the axonal damage that causes the disability.
(Of course, here we go again, round and round, and our gray matter discussion before - I still say that was a good one! - pretty well covered all our theories, etc. on this.)
Unfortunately, that's still the bottom line, huh? "We just don't know for sure".
I support the combination therapy myself. Do both. Something that keeps the immune system balanced and from "acting up", shall we say, and at the same time protect and stimulate the CNS to keep regenerating.
EDIT: And I still say that's not only possible NOW, but highly PROBABLE that that very thing can be accomplished. Not ONE person or MS researcher can cast any "doubt" about that at all! Or tell me that all my research is flawed in any way! The easiest way, even, to get rid of me and my hounding would be to tell me that my research is flawed and here's why. But, they can't. Tell me I'm not onto something, then? And with the support of the NMSS behind me, also? Uh huh. I'd sincerely like to hear one explanation why one researcher isn't jumping at this probable funding, and in an area of research that needs to be focused on. If it's not because my research is "flawed" or not probable to prove efficacious, then what IS it? I don't care how "difficult" a person I may be, I can be "handled".
That's easy. That's simply done by keeping the research honest and above reproach. That's not hard to do. You can't tell me that simply because they don't "like" me for any reason, they are depriving thousands of MS patients from this possible avenue of treatment progress? Naw........even I don't have THAT big of an ego!
No matter how you turn it, something doesn't make a whole lot of sense, does it? A person can't help but turn to the "conspiracy" avenues. Nothing else makes sense (especially given, also, that so many lawsuits are going on right now in medicine........involving RICO. That just floors me! But as I have said before, it's not because I don't work in the middle of it - and it still floors me!)
Uh oh........I keep adding here. And after I'm told that my research is "good", etc., I DO ask "why" will they not continue on with it then? That's when I get total silence as a response. The minute I ask "why", especially after being told what I found is valid, they clam up. Honestly. I cannot get one answer to "why" or "why not"? Tell me that isn't odd, at the very least.