OK, spent the day in Chicago at Northwestern.
I started with an MRI at 7:30 am. I just had an MRI at my home hospital..where I don't pay co-pays 'cause I work there...2 months ago, 3 new active lesions, so tx with IV steroids.
I was told by NWestern that i needed to have an MRI there because of a 'protocol' that can only be done there.
So, then I occupied myself in the city 'til 2pm for an appt with Dr. Burt.
Dr. Burt swept in, asked me a ton of history questions that I did not have the answer to off the top of my head...dates and such. I kept looking down at the pile of papers he was holding and asking 'didn't my neuro send that?, i was on Avonex at that time, isn't that in the records?' etc etc. So the reply was You are not a candidate for this study....what?
Is not my neurologist aware of your protocols? (they are buddies) Oh yes he is.... Then why am I here? This is a waste of time!
His answer was No it's not a waste of time, now we have your name, and all you have to do is have another relaps in the next 9 months and you're in. Oh good..the 5 that I have on MRI in the past 4 years are not good enough.
I could not help but feel that Dr. Burt should have 'people', like students that would have gone through my records and told me on the phone...we need to have 2 relapses within 12 months for you to be eligible.
Instead the questionnare said, how many relapses have you had since diagnosis?
So, mind you I work only to have health insurance, I make about 800 dollars a month, and am near homeless, will be homeless within about 2 months. I SPENT MY ENTIRE MONTH'S SALARY ON THE CO-PAY FOR THE STUPID MRI.
If they send me a bill for the visit with Burt I'll scream...
Things are not well with me, maybe I'm having a relapse now if they're connected with anger!!!!
Be kinder than necessary, for everyone you meet is fighting some kind of battle..