The study at northwestern includes 2 hospital stays, one for 2-3 days, another for 3- 4 weeks.
The 3-4 week stay is in protective isolation. Very expensive. You will be there until you t cell count gets high enough for you to leave. Thereafter reasonable precautions must be taken for a couple of months.
Even if you are not randomized to the translant arm of the study, you will undergo chest x ray, sinus ct scan, MUGA to determine heart health, ekg, blood tests, skin tests, urinalysis, pulmonary function test, lymphopheresis(which will be sent to the NIH for analysis).
Plus, as part of the study there are numerous MRI's included, more than one neuropsych evals and the participation in the study is for five years.
You will see your local neuro every month for 2 months, eevery 3 months for 5 years, during these visits, you will have a complete physical, and perhaps may have to undergo leukopheresis from time to time.
AND of course at any time there may be additional tests as they see fit, to make sure you are safe.
I know this sounds like alot, that's why they won't even see you to evaluate you except by recommendation of your neurologist.
Be kinder than necessary, for everyone you meet is fighting some kind of battle..