I have been having MS symptoms since 2000. The doctors back then diagnosed Fibromyalgia and treated unsuccessfully. I finally got off all the meds because they were doing nothing for me. The flare-ups continued over the next few years, each time getting a little worse and the doctors blew me off telling me that is was all in my head and such. In 2004 I have a severe flare-up and finally saw a doctor that agreed that this may be MS. I was tested for Lupus and other connective tissue disease. Had slightly high ANA and 1 positive RF. Everything has been negative since. Again, in 2009 I have a really severe flare-up that put me on crutches. I was intensely sick for 2 months. My doctor sent me for an MRI and the neurologist that read the MRI was very vague " 3mm focus of ischemic change in the periatrial white matter tracts." My doc was convinced that this was proof of MS and sent me to a Neurologist, who told me they were old age spots, I am 38. My doc did not agree and sent me to another neuro who told me they were migraine spots, yet I do not ever get migraines. My doctor has seen me in a flare up and knows something is wrong. He has finally agreed to send me to the Mayo Clinic in order to get some results.
Has anyone else been thru a mess like this? Has anyone been to the Mayo Clinic for a diagnosis? I know they are good, but was wondering what to expect. Isn't lesions in the periatrial region fairly specific to MS? That is what my doctor told me but the neurologists didnt even take it seriously.
BTW, these are my symptoms: severe fatigue, memory loss, muscle pain, burning sensations in my legs, tremors ( sometimes severe), bladder issues, tightening of my muscles around my chest, forget words I am trying to say, stuttering (when I am not a stutterer) and the list goes on.
I kept a journal, when I took it to the neurologist he wouldn't even look at them.
This is all so frustrating.