This Is MS Multiple Sclerosis Community: Knowledge & Support

SO thoughts on it? Also, when and where will it be practiced, I have tried a lot of thins and yes I am on medication.So please give all the info you can

Please go to the CCSVI forum for information on the liberation procedure. I am sure you will find all the information you need and more there unless the faithful followers are out searching for represenatives from the NMSS or neurologists to harass.

Nice, now aren't you going to feel like an ass if this person really wanted some help? What is your problem with CCSVI? Can't you just let it play out and see? It's like you want it to fail. If it's going to fail, it's going to fail. And people are going to react to their discovering this for the first time with enthusiasm. I know you hate that since you didn't discover it yourself, but man, you are so passive aggressive you have to put smart ass comments about CCSVI up in resopnse to someone's first post? You need to resolve your issues with who you disagree with concerning CCSVI, not a new poster.

After this started gaining traction, it's like you were on a mission to "one up" it. You posted post after post about "encouraging news about Tysabri" and all kinds of stuff as if to make people "look over here". I even remember your one post where you tried to warn people to "please don't do this until it's proven!!". What's your problem? It's already rolling down the hill dude. The only thing that will stop it now is the results of the research. If it shows it's the next big thing, then it will. If it shows it's bupkus, then it will. It now has to play out. When someone comes on this board seeking information for the first time, you ought to point them in the right direction. Granted you did that with the first part of your reply, but the last part just makes you look childish.

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It is not CCSVI that I have a problem with but the behavior of the people by some of the people on this forum that support it. Come on man, calling for people not to donate to the NMSS or not participate in a MS walk because the Society has not fully accepted CCSVI completley is insane. Look at the crap being posted on here"

"unfortunately its on the other side of canada from me magoo. : ( the olympics are also taking place in BC in Feburary. wouldn't some kind of protest or march that interrupts the games be amazing."

A protest march because the Canadian MS society has not jumped on the CCSVI bandwagon ?? The response the member of NMSS received on this forum after attempting to explain the NMSS's position is similar to the responses I have received via messages/replys in the last six months. It used to be people could come here and expect thoughtful responses to their questions(which they still sometimes get) but it seems more and more that is a thing of the past. Thanks for pointing out that my posts might come off as childish to some people. I do respect you Loobie and I will try to change the tone of my posts relating to CCSVI in the future. I have thought about just saying the heck with this forum but it has met a lot to me since being diagnosed with MS and I guess that is why I continue to come back to it.

I SUPPORT LOOBIE HERE....GROW UP! the real issue here is that this forum is about us MS'ers that need support from one another...NMSS is worried about saving their jobs...their asses!!!WHEN ALL ALONG IT WAS TO BE LOOKING FOR A CURE!!!!!well now something that finally makes sense and there are "critics" crawling out of the wood work....YOU MAY NOT BE INTERESTED IN CCSVI BUT THERE ARE ALOT OF US THAT ARE....PLEASE DO NOT REPRESENT OR ASSOCIATE YOUR OWN OPINION WITH THOSE OF US THAT WILL FIGHT FOR THE CURE!!!!keep it to yourself, if it is going to be negative...I PERSONALLY AM RESEARCHING IT AND DISRUPTIONS LIKE THIS ARE NOT CALLED FOR!!

SCORPION YOUR "STINGER" HERE IS AIMED AT THE WRONG PEOPLE!

LEETZ

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GOD BLESS.... CCSVI treatment Dr. Siskin great doc....symptom's improved for about 3 week's (gait, balance, spasticity) now back to square 1...

Thanks Leetz. You just proved my point.

what was that point exactly???

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GOD BLESS.... CCSVI treatment Dr. Siskin great doc....symptom's improved for about 3 week's (gait, balance, spasticity) now back to square 1...

OK, how about this...

The liberation procedure has been practiced in Italy, California, and Poland. So far the only one who has published on this is Dr. Paola Zamboni, but he has stopped doing the procedures. One very bad result was seen in California. The doctor there has stopped doing the procedures, but the reasons why are unclear. You can still have the stent procedure done in Poland.

Between these 3 doctors, a very strong correlation has been seen between jugular vein obstructions and MS. Favorable neurological outcomes have been reported by Dr. Zamboni, but the neurological part of his work has not been very rigorous. Outcomes from California and Poland are from patient self-reporting. See the CCSVI forum for much more detail (which is what scorpion suggested).

Scorpion,

Despite our long disputes and different opinions, I consider you an e-friend of mine. I have even changed my name to "sou(r)" for you!

Let's make it simple. If sb have MS, it is very likely to have CCSVI, too, which is a different condition.

- It seems that correcting CCSVI leads to a favourable neurologic outcome.
- The vast majority of this forum's people who were tested for it were found positive.
- Since it is (relatively) easily corrected, why not to have it fixed, since it has been proven safe?
- MS is so different for each of us. Others have numbness, others spasticity, others paralysis, others incontinence. Why do all have blood flow problems? Veins are not directly controlled by the nervous system. They shouldn't.
- The NMSS should work for the interest of the patients. They have funded tons of research less promising, why be so negative against this, which has a reasonable explanation?

The list could grow much longer. Could you answer these questions? I bet that only research can, but it has to be funded first. Why not fund it or conduct it?

sou(r)

PS: I want to have my left jugular further tested. Not for MS, but for these headaches!

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Shortest joke: "We may not be able to cure MS but we can manage its symptoms."