OddDuck wrote:Ok, people with mild or RRMS are showing themselves (at least to me) to be extremely more "desperate" than is rational given the type of MS they have. It's like someone screaming to be given chemotherapy for a headache.
I have found observing my response and others to the Tysabri tadoo really quite interesting too. And despite not being anywhere near a whiff of a T infusion (was never due in EU till '07) I still feel let down - more even than on Saturday when Spurs lost 1-0! And angry
- I'm quite sure research into MS therapy in general will have been put back by BioGen's seeming rush to market with T - already seen one class action posted that will put some red flags up for the pharma co's. I guess my reaction has been irrational!
I'm told I have RR. My QoL is not significantly hampered by it - as long as I can take regular rest breaks, there's a loo nearby and I can get some PDE5 inhibitors
. So why should I want any (more) meds? First my neuro recommends them and suggests that if any benefit is to be had then early
adoption is more
beneficial - whatever I think of him I should respect that he has some knowledge. And secondly, I just dont know how it will go with me. I met a woman collecting outside the supermarket for the UK MSS she has had RR MS for 38 years, took no CRAB and is still active. Well if I knew that would be the course of things for me too then maybe I wouldnt want anything either! If I last that long I'll be 88 in 2043! Isnt this uncertainty the real bugger of MS!!
And so I will reach for almost any tried and tested hope to, at best, now prolong the status quo. And I suspect many others - irrationally or hysterically maybe but explainably - are doing so too.
We could go round the "false hope" debate again, by the way, but Wesley might get cross so we'll let that lie
Good luck with the Campath, Robin. Maybe watch out for the combination therapies though given the T experience.