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patientx
 Post subject: Marc's famous now
PostPosted: Thu Jan 21, 2010 10:16 am 
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http://ms.about.com/b/2010/01/19/ccsvi- ... ul-way.htm
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shye
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PostPosted: Thu Jan 21, 2010 1:52 pm 
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KUDOS FOR A SHARP, FUNNY GUY!
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Lyon
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PostPosted: Thu Jan 21, 2010 5:49 pm 
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Last edited by Lyon on Mon Nov 21, 2011 8:56 pm, edited 1 time in total.

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marcstck
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PostPosted: Fri Jan 22, 2010 12:32 am 
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I'm definitely flattered and humbled that Julie chose to post a link to my article on CCSVI. That particular post on my blog has generated literally thousands of hits, even before Julie posted it on about.com.

Not to look a gift horse in the mouth, as of course I am very happy with the recognition and attention, but I wish some of the people reading my CCSVI article would poke around a little more on the site, and read some of the other essays I've written, most of which have to do with the psychology of dealing with chronic illness, and the realities of living a disabled life. I've tried to write most of these essays with at least a bit of humor, and with a gentle sprinkling of the Eastern philosophies to which I've turned for comfort.

My hope is to share whatever wisdom has been forced on me about how to find solace and even happiness in the face of being dealt a shitty hand.

I was initially very reluctant to get into blogging, but I've found it to be a truly worthwhile and humbling experience. I hope in some small way I've done some good...

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www.wheelchairkamikaze.com
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Lyon
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PostPosted: Fri Jan 22, 2010 10:00 am 
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Last edited by Lyon on Mon Nov 21, 2011 8:54 pm, edited 1 time in total.

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Terry
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PostPosted: Sat Jan 23, 2010 9:58 am 
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Marc,
I read your blog regularly. I have even shared it with my friends at work. I told them that for me, reading your blog is like a visit to the art museum. They enjoyed the reading, but didn't get the analogy. Your blog IS artistic, thought provoking, and beautiful.

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I hope in some small way I've done some good...


For me, that's a hands down, absolutely.
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Lyon
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PostPosted: Sat Jan 23, 2010 10:16 am 
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Last edited by Lyon on Mon Nov 21, 2011 8:53 pm, edited 1 time in total.

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marcstck
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PostPosted: Sun Jan 24, 2010 1:38 am 
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Lyon wrote:
I'm all caught up on the reading. I hadn't read any of the 2010 stuff till now.

I shouldn't ask because I think you would have told us but have you heard any more from the NIH lately?

How far are you from Harlem?


Bob, the NIH has pretty much decided that I don't have MS, and they're in the process of trying to figure out exactly how next to proceed. Given the fact that I do have stenosis in my left jugular, they're giving serious consideration to my disease being primarily vascular in nature, and I'm waiting to hear what they intend to do about it.

I live about 3 miles from Harlem. I'm on the Upper West Side.

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marcstck
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PostPosted: Sun Jan 24, 2010 1:39 am 
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Terry wrote:
Marc,
I read your blog regularly. I have even shared it with my friends at work. I told them that for me, reading your blog is like a visit to the art museum. They enjoyed the reading, but didn't get the analogy. Your blog IS artistic, thought provoking, and beautiful.

Quote:
I hope in some small way I've done some good...


For me, that's a hands down, absolutely.


Terry, thanks for the kind words.

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Marc
www.wheelchairkamikaze.com
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