Marc's famous now

If it's on your mind and it has to do with multiple sclerosis in any way, post it here.

Marc's famous now

Postby patientx » Thu Jan 21, 2010 9:16 am

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Postby shye » Thu Jan 21, 2010 12:52 pm

KUDOS FOR A SHARP, FUNNY GUY!
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Postby Lyon » Thu Jan 21, 2010 4:49 pm

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Postby marcstck » Thu Jan 21, 2010 11:32 pm

I'm definitely flattered and humbled that Julie chose to post a link to my article on CCSVI. That particular post on my blog has generated literally thousands of hits, even before Julie posted it on about.com.

Not to look a gift horse in the mouth, as of course I am very happy with the recognition and attention, but I wish some of the people reading my CCSVI article would poke around a little more on the site, and read some of the other essays I've written, most of which have to do with the psychology of dealing with chronic illness, and the realities of living a disabled life. I've tried to write most of these essays with at least a bit of humor, and with a gentle sprinkling of the Eastern philosophies to which I've turned for comfort.

My hope is to share whatever wisdom has been forced on me about how to find solace and even happiness in the face of being dealt a shitty hand.

I was initially very reluctant to get into blogging, but I've found it to be a truly worthwhile and humbling experience. I hope in some small way I've done some good...
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Postby Lyon » Fri Jan 22, 2010 9:00 am

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Postby Terry » Sat Jan 23, 2010 8:58 am

Marc,
I read your blog regularly. I have even shared it with my friends at work. I told them that for me, reading your blog is like a visit to the art museum. They enjoyed the reading, but didn't get the analogy. Your blog IS artistic, thought provoking, and beautiful.

I hope in some small way I've done some good...


For me, that's a hands down, absolutely.
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Postby Lyon » Sat Jan 23, 2010 9:16 am

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Postby marcstck » Sun Jan 24, 2010 12:38 am

Lyon wrote:I'm all caught up on the reading. I hadn't read any of the 2010 stuff till now.

I shouldn't ask because I think you would have told us but have you heard any more from the NIH lately?

How far are you from Harlem?


Bob, the NIH has pretty much decided that I don't have MS, and they're in the process of trying to figure out exactly how next to proceed. Given the fact that I do have stenosis in my left jugular, they're giving serious consideration to my disease being primarily vascular in nature, and I'm waiting to hear what they intend to do about it.

I live about 3 miles from Harlem. I'm on the Upper West Side.
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Postby marcstck » Sun Jan 24, 2010 12:39 am

Terry wrote:Marc,
I read your blog regularly. I have even shared it with my friends at work. I told them that for me, reading your blog is like a visit to the art museum. They enjoyed the reading, but didn't get the analogy. Your blog IS artistic, thought provoking, and beautiful.

I hope in some small way I've done some good...


For me, that's a hands down, absolutely.


Terry, thanks for the kind words.
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