This Is MS Multiple Sclerosis Community: Knowledge & Support
Welcome to the world's leading forum on Multiple Sclerosis research, support, and knowledge. For over 10 years, This is MS has provided an unbiased community dedicated to Multiple Sclerosis patients, caregivers, and affected loved ones.
A nurse at my MS clinic here in Calgary, Alberta (Canada) spoke to one of the nurses involved in some of the clinical trials. She said the cost will be "astronomical" about $20,000 per year, and it is doubtful if our drug coverage program will cover it. In Canada we can expect to wait several months or a year for it to be approved once it is approved in the USA.
This is my first post here, I'll have to do an introduction at some point!
$20,000 a year - oh, my gosh! And to think people have been getting this drug at compounding pharmacies for years (4-AP) at a nominal $$. There is something not in balance here!! I know, Acorda needs to get paid back for the research expense -- but, $20,000 per year?? I wonder if the US insurance companies will pay for it --
I wanted to share an article I wrote on Ampyra/4-aminopyridine which pulls together history of the research and patient stories. I don't know of any other place on the web which has all of this information in one place.
It would be great if folks interested would come read and comment. Obviously I don't participate much here at all, but I do occasionally come to TIMS to catch up on the latest.