This Is MS Multiple Sclerosis Community: Knowledge & Support

Welcome to the world's leading forum on Multiple Sclerosis research, support, and knowledge. For over 10 years, This is MS has provided an unbiased community dedicated to Multiple Sclerosis patients, caregivers, and affected loved ones.
It is currently Wed May 22, 2013 10:19 am


All times are UTC - 8 hours [ DST ]




Post new topic Reply to topic  [ 5 posts ] 
Author Message
 Post subject: Day 4 on Gilenya
PostPosted: Wed Nov 16, 2011 9:03 pm 
Offline
Getting to Know You...
User avatar

Joined: Wed Jul 07, 2010 3:00 pm
Posts: 15
I started Gilenya on Saturday. I don't know what I was expecting. I was a little fatigued the first couple of days. Other than that nothing has happened, good or bad. Just a not for anyone interested in starting.


Top
 Profile  
 
 Post subject: Re: Day 4 on Gilenya
PostPosted: Thu Nov 17, 2011 1:55 am 
Offline
Family Elder
User avatar

Joined: Wed Jul 27, 2005 3:00 pm
Posts: 2691
Location: Sydney, Australia
I have been on it for about 2 weeks, and I cannot say I have noticed anything that is not within the day to day change of MS symptoms :sad: but one could also point out, I have not had a relapse in those two weeks...


Top
 Profile  
 
 Post subject: Re: Day 4 on Gilenya
PostPosted: Mon Mar 26, 2012 11:57 am 
Offline
Family Elder

Joined: Sun Apr 02, 2006 3:00 pm
Posts: 545
Location: Naples, FL
Could you two update your experiences with Gilyena? I just returned from neuro appt and she was very positive about it. It is a large practice and they have approx 50 patients on it.


Top
 Profile  
 
 Post subject: Re: Day 4 on Gilenya
PostPosted: Sun Oct 21, 2012 4:42 pm 
Offline
Newbie

Joined: Sun Oct 21, 2012 4:03 pm
Posts: 2
Location: Phoenix
I'm on my 3rd week of Gilenya and so far no complaints! A Dr. and Nurse watched me take my first dose. It was very anti-climatic, lol. I felt slighty dizzy a few hours after taking it and maybe a bit more tired than usual for a few days, but nothing extreme or that gave my any worry. So far I would give it an A rating. Hopefully it's quietly doing it's job :smile:


Top
 Profile  
 
 Post subject: Re: Day 4 on Gilenya
PostPosted: Wed Oct 24, 2012 8:49 am 
Offline
Newbie

Joined: Wed Oct 24, 2012 7:35 am
Posts: 2
mandamurr81 wrote:
I started Gilenya on Saturday. I don't know what I was expecting. I was a little fatigued the first couple of days. Other than that nothing has happened, good or bad. Just a not for anyone interested in starting.

I have been on Gilenya for about 2 years now...it may play with your BP just keep an eye on it...other then that no side effects here...


Top
 Profile  
 
Display posts from previous:  Sort by  
Post new topic Reply to topic  [ 5 posts ] 

All times are UTC - 8 hours [ DST ]


Related topics
 Topics   Author   Replies   Views   Last post 
There are no new unread posts for this topic. Gilenya and LDN

RedPepper

3

2459

Fri Jan 25, 2013 5:45 pm

ariehs View the latest post

There are no new unread posts for this topic. Gilenya Effects on the CNS

Chilax

3

2644

Wed Mar 09, 2011 3:20 pm

lmacalus View the latest post

There are no new unread posts for this topic. My experiences, now on Gilenya

CureOrBust

3

2422

Fri Apr 06, 2012 3:35 am

seeva View the latest post

There are no new unread posts for this topic. X-Rays and Gilenya?

CureOrBust

0

781

Wed Aug 08, 2012 4:45 am

CureOrBust View the latest post

There are no new unread posts for this topic. Rebound and Gilenya

RedPepper

0

981

Mon Aug 13, 2012 11:31 am

RedPepper View the latest post

 


Who is online

Users browsing this forum: No registered users


You cannot post new topics in this forum
You cannot reply to topics in this forum
You cannot edit your posts in this forum
You cannot delete your posts in this forum

Search for:
Jump to: