Day 4 on Gilenya

Gilenya, or Fingolimod, is the first approved oral disease modifying drug for MS.

Day 4 on Gilenya

Postby mandamurr81 » Wed Nov 16, 2011 8:03 pm

I started Gilenya on Saturday. I don't know what I was expecting. I was a little fatigued the first couple of days. Other than that nothing has happened, good or bad. Just a not for anyone interested in starting.
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Re: Day 4 on Gilenya

Postby CureOrBust » Thu Nov 17, 2011 12:55 am

I have been on it for about 2 weeks, and I cannot say I have noticed anything that is not within the day to day change of MS symptoms :sad: but one could also point out, I have not had a relapse in those two weeks...
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Re: Day 4 on Gilenya

Postby Loriyas » Mon Mar 26, 2012 10:57 am

Could you two update your experiences with Gilyena? I just returned from neuro appt and she was very positive about it. It is a large practice and they have approx 50 patients on it.
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Re: Day 4 on Gilenya

Postby valnphx » Sun Oct 21, 2012 3:42 pm

I'm on my 3rd week of Gilenya and so far no complaints! A Dr. and Nurse watched me take my first dose. It was very anti-climatic, lol. I felt slighty dizzy a few hours after taking it and maybe a bit more tired than usual for a few days, but nothing extreme or that gave my any worry. So far I would give it an A rating. Hopefully it's quietly doing it's job :smile:
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Re: Day 4 on Gilenya

Postby Aprillynn » Wed Oct 24, 2012 7:49 am

mandamurr81 wrote:I started Gilenya on Saturday. I don't know what I was expecting. I was a little fatigued the first couple of days. Other than that nothing has happened, good or bad. Just a not for anyone interested in starting.

I have been on Gilenya for about 2 years now...it may play with your BP just keep an eye on it...other then that no side effects here...
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