MSRC Launch Gilenya User Diaries

Gilenya, or Fingolimod, is the first approved oral disease modifying drug for MS.

MSRC Launch Gilenya User Diaries

Postby MSUK » Wed Mar 28, 2012 7:23 am

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MSRC Launch Gilenya User Diaries.

Following on from the success of our Tysabri User Diaries in providing personal experiences of MSers on a drug, MSRC have today launched a new facility for those taking, or thinking of taking Gilenya, the first approved oral MS medication. http://www.msrc.co.uk/index.cfm/fuseact ... geid/3403/

Kim has become our first diarist and you can read her page at http://www.msrc.co.uk/index.cfm/fuseact ... ageid/3404

If you are taking Gilenya, or are contemplating using it, and would like to join the Gilenya Users panel please contact our webmaster at squiffy@msrc.co.uk
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Re: MSRC Launch Gilenya User Diaries

Postby NHE » Wed Mar 28, 2012 9:31 pm

Gilenya scares the heck out of me. I’m a big enough woman to admit that. The materials they send before you take the drug seem cheerful enough; page after page of photos showing smiling people carrying motorcycle helmets through flea-markets or bird watching or strolling on sunset beaches BUT each page was also filled with dire warnings about side effects I’d never even imagined.


Didn't the CRAB pharmas receive warnings from the FDA for similar tactics?

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Re: MSRC Launch Gilenya User Diaries

Postby MSUK » Mon Apr 02, 2012 4:42 am

New MSRC Gilenya Diarists

Mike and Liz have joined the MSRC Gilenya Diarist Panel.

You can read their first entries at http://bit.ly/HO7sSP & http://bit.ly/HHrhQm
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Re: MSRC Launch Gilenya User Diaries

Postby MSUK » Tue Apr 10, 2012 1:28 am

Kim's Gilenya update April 10th, 2012

Kim has updated her MSRC Gilenya Diary.

You can read Kim's latest entry at http://bit.ly/H3mnOT
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Re: MSRC Launch Gilenya User Diaries

Postby MSUK » Mon Apr 23, 2012 2:50 am

MSRC Gilenya Diary Update

Mike has sent in his first update to his Gilenya Dairy.

You can read this at http://bit.ly/HO7sSP
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Re: MSRC Launch Gilenya User Diaries

Postby MSUK » Mon May 14, 2012 7:19 am

MSRC Gilenya Diary Update

Kim has sent in a new Gilenya Diary Update.

You can read it at http://bit.ly/H3mnOT
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New MSRC Gilenya Diarist

Postby MSUK » Fri Jun 15, 2012 6:31 am

New MSRC Gilenya Diarist

Debbie has kindly joined our team of Gilenya Diarists.

You can read her first entry at http://www.msrc.co.uk/index.cfm/fuseact ... ageid/3481
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Re: MSRC Launch Gilenya User Diaries

Postby MSUK » Mon Jan 21, 2013 1:09 am

MSRC Gilenya Diary Update

Toots Mstruth has sent in her latest Gilenya diary update

You can read this at http://bit.ly/KfRx0b
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