A Canadians first dose: "Well unfortunately it did not go well. My blood pressure dropped so quickly, to 30 bpm they sent me to VGH and after, every Doctor and their dog came to see me, as they are unfamiliar with Gilenya.
They had to call Poison Control. That's where the ER Doctors had to get the info.
I spent 26 hours in the Cardiac Care Unit, I'm good now and home but they say I'm still at risk for the next 21 days! I still have to go get a portable monitor to wear.
Remember all people react differently, and I usually react well to drugs. i was unaware that 11 people had died, when I was told 2."
Some people with CCSVI have low blood pressure to begin with.
Gilenya has been through trials, and supposedly the benefit outweighs the risk. But there is risk to taking it. There is risk to having MS. And there is, however small, a risk to having angioplasty done. We are getting the results of studies done at various centers, and these are shedding light on what the true risks are, rather than what the media or the neurologists uninvolved with studies might say.
I am glad that the outcome was ok for the Canadian who had this response to Gilenya.