I have had no real side effects I can attribute specifically to Gylenia. Maybe a tiny bit of chest congestion when I first started it, but that could of been me looking out hard for side-effects. The really weird thing is that even though the risk of cold/flu's are supposedly increased, I can't really say I have had one since starting. Although I do use Amantadine and Tamiflu at the slightest tickle, as my trigger for a relapse is a cold/flu. I think I did get the eye exam before the day by a random optometrist.pballer76 wrote:The lumps and itching drives me crazy.
I may of had a blood test that I dont remember before the day of getting my first dose. my memory, is that I came in early (ie around 9am) into the hospital (where the ms clinic is, its a teaching hospital). They took a LOT of different tubes of blood. I then had an EKG, and then only a few hours later, I was given my first dose under observation. I had to stay there for around 4 hours. I think I had a very minor slowdown of heart rate on one measurement, but it was well within normal, and returned on the next measurement. So as far as I can tell, after I was designated to start, I started on the first day the hospital was doing the observation day, and had all my blood and EKG tested on the day. They did have the benefit of being part of the hospital so had access to all its abilities to process the tests.pballer76 wrote:I am still waiting to have my EKG, eye exam and blood work. I am going to get three ekg's. Is this standard? My neuro wants an EKG, blood work and the eye exam before filling out the paperwork and sending in to Novartis.
This seems like it will take a while before my first dose.
I have never been on Coopaxone, and had quit Rebif many years before. So I cant help answering this question.pballer76 wrote: Is there a washout period from Copaxone?
I think it was simply down to when they had an opening for the day of observation for the first dose. I am pretty sure they did all the blood tests (a LOT of different vials) on the day, and they definitely did the EKG on the day. So maybe just an eye test any day before the first dose day.pballer76 wrote: How long did it take most people to get on the medicine after deciding they wanted Gilenya?
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