Three months on Gilenya

Gilenya, or Fingolimod, is the first approved oral disease modifying drug for MS.

Three months on Gilenya

Postby pballer76 » Fri Jun 06, 2014 1:59 pm

Well I have been on a Gilenya for 3 months.
No flares or anything. Easiest med I have been on for MS.
My neuro wants 1st blood work between 3 & 4 months.
How often is blood work typically done?
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Re: Three months on Gilenya

Postby CaliReader » Sat Jun 07, 2014 7:19 am

I'm on a schedule of every 6 months for eye exam, liver testing, blood count. So far, everything is fine.
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Re: Three months on Gilenya

Postby simonelea » Tue Aug 12, 2014 10:21 pm

I have been on Gilenya since March 2013 and so far (touch wood!!), everything is ok. No relapses which is brilliant. However I think I am regularly experiencing some of the side effects (low back pain, head aches, nausea & diarrhoea) which can be annoying but I guess things could be worse!
Keep smiling!
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Re: Three months on Gilenya

Postby Cessna182d » Tue Sep 16, 2014 10:17 pm

Hi
I was on Tysabri for 3.5 years but bloods came back with a positive to the JC Virus. Neurologist has taken me off that and said Gilenya will be better. I guess the MS isnt stopping me doing anything I just have wobbly legs, pins and needles in fingers, tired and I also get erections that last up to 2 hours two or three times per day which the Neurologists says that can happen. My question being if you are on Gilenya has it been OK and any side effects
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Re: Three months on Gilenya

Postby NHE » Wed Sep 17, 2014 12:53 am

Cessna182d wrote:Hi
I was on Tysabri for 3.5 years but bloods came back with a positive to the JC Virus. Neurologist has taken me off that and said Gilenya will be better. I guess the MS isnt stopping me doing anything I just have wobbly legs, pins and needles in fingers, tired and I also get erections that last up to 2 hours two or three times per day which the Neurologists says that can happen. My question being if you are on Gilenya has it been OK and any side effects


Welcome to ThisIsMS. You might want to read the Prescribing Information for Gilenya if you haven't already.
http://www.pharma.us.novartis.com/produ ... ilenya.pdf
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