Hi from a Bluenoser (Nova Scotia)

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Hi from a Bluenoser (Nova Scotia)

Postby ToddH » Sun Feb 07, 2010 10:29 am

Hello all,
I'm a semi-retired husband with SPMS. I was Dx'ed in '01 after a looong and tiring battle. I have all the usual symptoms, fatigue, spasticity, bladder, etc. I am putting a lot of faith in this newer CCVSI, am I being too optimistic?

ToddH :D
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Postby scorpion » Sun Feb 07, 2010 11:31 am

Welcome ToddH!!! You have come to the right place for support and a if neccesary a place to vent! Welcome.
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Postby lubylu » Tue Feb 09, 2010 5:55 am

Welcome toddh , I too am a bluenoser you have come to a great place there is alot of information and support here :)
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Postby jimmylegs » Tue Feb 09, 2010 6:07 am

Hi Todd, welcome to TIMS. As far as CCSVI goes, I would say be cautiously optimistic. From the sounds of the Buffalo testing, I think we can say at this stage you likely would find some evidence of CCSVI on testing. I don't imagine we can say whether your particular scenario will be easily treated. If you have not already done so, you can read about the experiences of other SPMS-ers post surgery, on the CCSVI tracking project 'sticky'. http://www.thisisms.com/ftopic-8346-0-d ... -spms.html
HTH!
my approach: no meds so far - just nutrient-dense anti-inflammatory whole foods, and supplements where needed
info: www.whfoods.com, www.nutritiondata.com
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Thanks

Postby ToddH » Tue Feb 09, 2010 1:34 pm

jimmylegs, I checked out that link and read some great news! I know it is different for everyone, but I think this may be worth checking into deeper.

lubylu, do you still live in NS? I am in Truro.

scorpion, I promise not to be too vocal in my rants. hehe

thanks all :D
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Postby lubylu » Tue Feb 09, 2010 3:59 pm

No i now live in alberta but lived in dartmouth area until 2006. Really miss the maritimes. :(
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From Nova Scotia

Postby capegirl » Mon Mar 01, 2010 3:44 pm

Hi Toddh, I saw your posting and wanted to let you know that I am also from Nova Scotia, Cape Breton actually. Have had MS for 14 years, just joined today and looking for information on CCSVI.

Liz
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Postby globab » Wed Mar 03, 2010 8:14 am

HI Todd....
another bluenoser here.... live in Yar. CO........
diagnosed since 05......
i visit the halifax clinic as you do to i am sure....
i am hopeful for this new finding as well.....
i am one of 4 in my family with MS.....
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Postby ToddH » Fri Mar 12, 2010 4:47 am

Hi globab, yes my hfx visits to my neuro Dr. Bahn I hate so much. It reminds me of how sick I am.
"I am aware that I am less than some people prefer me to be, but most people are unaware that I am so much more than what they see." - douglas pagels
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Postby gymbuff » Fri Mar 12, 2010 7:49 am

Hi All,
Excuse my ignorance - what is a blue noser??
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Postby ToddH » Fri Mar 12, 2010 3:39 pm

A person from Nova Scotia, we had a sailboat named the Bluenose. It was fast in it day. :)
"I am aware that I am less than some people prefer me to be, but most people are unaware that I am so much more than what they see." - douglas pagels
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