This Is MS Multiple Sclerosis Community: Knowledge & Support

Hello all,
I'm a semi-retired husband with SPMS. I was Dx'ed in '01 after a looong and tiring battle. I have all the usual symptoms, fatigue, spasticity, bladder, etc. I am putting a lot of faith in this newer CCVSI, am I being too optimistic?

ToddH

Welcome ToddH!!! You have come to the right place for support and a if neccesary a place to vent! Welcome.

Welcome toddh , I too am a bluenoser you have come to a great place there is alot of information and support here

Hi Todd, welcome to TIMS. As far as CCSVI goes, I would say be cautiously optimistic. From the sounds of the Buffalo testing, I think we can say at this stage you likely would find some evidence of CCSVI on testing. I don't imagine we can say whether your particular scenario will be easily treated. If you have not already done so, you can read about the experiences of other SPMS-ers post surgery, on the CCSVI tracking project 'sticky'. http://www.thisisms.com/ftopic-8346-0-d ... -spms.html
HTH!

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my approach: no meds so far - just balanced whole foods (partial 'paleo', much less outright elimination), science, supplements, & bloodwork
my regimen - www.thisisms.com/ftopict-2489.html
www.whfoods.com, www.nutritiondata.com

jimmylegs, I checked out that link and read some great news! I know it is different for everyone, but I think this may be worth checking into deeper.

lubylu, do you still live in NS? I am in Truro.

scorpion, I promise not to be too vocal in my rants. hehe

thanks all

No i now live in alberta but lived in dartmouth area until 2006. Really miss the maritimes.

Hi Toddh, I saw your posting and wanted to let you know that I am also from Nova Scotia, Cape Breton actually. Have had MS for 14 years, just joined today and looking for information on CCSVI.

Liz

HI Todd....
another bluenoser here.... live in Yar. CO........
diagnosed since 05......
i visit the halifax clinic as you do to i am sure....
i am hopeful for this new finding as well.....
i am one of 4 in my family with MS.....

Hi globab, yes my hfx visits to my neuro Dr. Bahn I hate so much. It reminds me of how sick I am.

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"I am aware that I am less than some people prefer me to be, but most people are unaware that I am so much more than what they see." - douglas pagels

Hi All,
Excuse my ignorance - what is a blue noser??

A person from Nova Scotia, we had a sailboat named the Bluenose. It was fast in it day.

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"I am aware that I am less than some people prefer me to be, but most people are unaware that I am so much more than what they see." - douglas pagels