MS from cape breton

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MS from cape breton

Postby sams » Sat Mar 20, 2010 5:45 am

Hi, just diagnosed with MS this month. Not feeling very good about it. to wake up one morning and find this.....and now to find out just how many people have this.....hear about this site and thought it might ease the mind a little.......sam
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MS from Cape Breton

Postby Saskatoongal » Tue Mar 23, 2010 11:42 am

It is hard hearing that diagnosis. I was diagnosed with it in 1998, and then there wasn't the research, information and hope there is now. I try to live life to the fullest and deal with my MS on a daily basis. You will find that MS may be hard, but it can also be a learning experience as well. You become aware of an inner strength, and have opportunities to meet interesting supportive people. I have balance problems, so sometimes I may walk as if I had one too many tequilas..I just laugh..which for me has to be the best medicine. I like you have just joined this site and think it is great. So take care, the future has much to offer and try to laugh, life does go on.
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thanks

Postby sams » Tue Mar 23, 2010 12:08 pm

For sure it is a learnig experience, I am learning to adapt to my new body and figure out how to do things. Walking is difficult. Just a waiting game to see if it goes away. You are right about finding out who are real friends. My wife is a saint for sure. Need isay more about the things she does. Appointment with the doctor in tw weeks. Hanging in there......
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No Problem

Postby Saskatoongal » Wed Mar 24, 2010 3:46 pm

Yes you are right about friends, have to remember many people have never experienced trauma, therefore don't identify. Good luck with the docs, ask as many questions as you can, and with walking you will have good days and bad days, mine depends on weather.
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Postby ToddH » Thu Mar 25, 2010 10:32 am

Hi sams, I'm in Truro (not far away). I was dx'ed in 2001 with progressive MS. I travel to Hfx. for my neuro appointments. Do you also?

It is very hard when you first learn of the disease, and I'm not sugar coating it is much harder some days than others. Just remember to keep fighting, do not give up.

Welcome
ToddH :D
"I am aware that I am less than some people prefer me to be, but most people are unaware that I am so much more than what they see." - douglas pagels
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Postby sams » Thu Mar 25, 2010 11:56 am

Thanks for the replies, Hard to type with one hand. This is my first time and you are right it is not easy to adjust but I wait forit to pass like everyone says it will. Todd ihaven't had an appointment yet, and they have a clinic in Sydney. I have onbe schedualed for Aprili 07. I am going to ask for a lumbar test. I guess it is ok? Thanks Sask.
Does your feet get cold? A itch in my neck? Fingers feel locked up? can't find my hand/arm sometimes? Are these some of the normal things to have?
Still with my head up and with hope. Thanks for a wonderfull wife and friends.
Sam
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Postby Punchy » Tue Mar 30, 2010 11:51 am

Hey, I'm from Halifax, though in Ontario now.

I'm sorry to hear that you've joined our club.

NS has a relatively high rate of MS. I wonder why?
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Postby sams » Thu Apr 01, 2010 6:05 am

hi punchy,

i am from nfld, came to cape breton 16 years ago,
seems like a lot of people have ms, not sure it is because now i am aware of it and it has become a topic. a confusing time because everyone has an opinion and hear-say on what to do or they heard of new meds....i will wait to see the doctor next week and take it from there.

sorry for the small caps.....can only type with one hand
cheers
sam
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Postby ReddE » Thu Apr 01, 2010 6:08 am

Just thought I drop in to say hello I live on the famous Cabot Trail, Cape Breton and was diagnosed in May of 2008. I have Primary Progressive MS. It's not easy but it is what it is and we have to move on with it. All I have to say is do a lot of research and inform yourself about MS. Be your own advicate and unless you feel really comfortable with your general neurologist see an MS specialist that deals with this on a daily basis.
Take care
ReddE
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Postby sams » Thu Apr 01, 2010 6:13 am

hi redde,
did you go to the cbrh in sydney? i do not know what king i have yet, too new i guess? are you taking any meds?
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Postby ReddE » Thu Apr 01, 2010 6:30 am

Hey Sams,
NO, I went to high school at Memorial High in Sydney Mines. I am on your meds for fatigue and pain etc.... I don't take any of the coventional drugs for MS but I just started one of the more promising drugs in my opinion, Low-Dose Naltrexone (LDN) I would suggest that you google on LDN and read about it.
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Postby sams » Thu Apr 01, 2010 6:49 am

thanks redde,
i was refering to the hospital...sorry about that....i guess it is the only place outside halifax.
my wife is from sydneymines,
i will look up info on ldn.
hey i managed to walk to the end of the driveway and pick up the flyers....

sam
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Postby ReddE » Thu Apr 01, 2010 7:04 am

Hey Sams,
MY mistake. I go there to see my neurologist Yassar Chakfe. Not a bad guy, very open-minded person. He will think outside the box with a little guidance. What type of MS were you diagnosed with. I'll talk later, my 3 year old little girl needs some attention.
cheers ReddE
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Postby sams » Thu Apr 01, 2010 12:03 pm

hi redde,
went to canadian tire and picked up patio chairs....well my wife did...i just watched....oh boy...hard to do...met a wom,an who seen me and knew right away i have ms......dr. chakfe did the mri and told me i have ms. he was going to do a spindle tap but then i was refered back to mararah. i do not know why. i will see him on the 7. my first visit sence so i will have some answers then.
ok for now, have fun with your little one. our kids are all grown up and on thier own.

cheers
sam
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