Hi everyone. My name is Lewis and I live in Greenville, NC, USA. I have been following this site since November 2009. I decided to join and make an introduction since my wife received her official MS diagnosis on March 23, 2010.
Our Story: On November 1, 2009 my wife began having minor numbness and tingling in her feet. By the late afternoon, she was unable to feel the gas pedal in the car. She refused to go to the emergency room that night. I walked her into the emergency room on November 2009.
We saw several docs that day. CT was ok. Blood work came back fine. The neurologist still felt uneasy about letting her go home so she was admitted. The intial diagnosis was transverse mylitis.
Four days later, my wife was paralyzed from mid-chest (T-5) downward. She received steroids, plasmaphoresis, etc. Intial MRI showed 3 brain lesions and four spinal cord lesions.
Since then, we have seen four neurologists and traveled to Johns Hopkins. My wife's condition has continued to worsen. She is still paralyzed, has tremors in her upper extrems, and has some cognitive changes.
Her latest MRI shows four new brain lesions with three showing enhancement. Her spinal lesions are now basically one complete lesion from T-5 down. She recieved her Tysabri infusion yesterday.
I have found a wealth of information on this site. As for the slow diagnosis, there was some evidence that she had suffered from ADEMs. I look forward to continuing my education and appreciate everyone's contributions.
Here's to learning what the new normal will be and what it means to truly live day to day.