Great site! Any chat room?

New members should feel free to introduce themselves here

Great site! Any chat room?

Postby MaybeFriend » Sun Jun 27, 2010 12:38 pm

Hello ThisIsMS,

As a noob, first, thank you for your work behind the web site and for its users contributions; great job! 8O

I'm here as an undiagnosed to learn from MS veterans how to get Dx'ed, treat preventively early and aggressively; and how to prepare my life for what's probably coming my way. In sum, I'm looking to hear from you for all the good stuff you people wished you would have told when your MS journey began. And then - when ready - help other in return. As someone knowledgeable in psychopharmacology, I'm already giving my share of help in this domain on the web since about a decade now and I'm looking forward to share everything anyone here will be willing to share with me here.

My very first question is: Do you guys have a live chat room?
My second question is: How should I start here? I'm shy to bug members here right away with my story and questions. :oops:


Hope you all had at least one good moment today,
MaybeFriend
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Postby L » Sun Jun 27, 2010 2:34 pm

Hiya!

My suggestion for someone new to MS would be to take high dose D3! http://www.webmd.com/multiple-sclerosis/news/20090428/high-doses-vitamin-d-cut-ms-relapses

Don't think there's a chat room though..
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Postby MaybeFriend » Sun Jun 27, 2010 3:23 pm

L wrote:Hiya!
My suggestion for someone new to MS would be to take high dose D3!


Hi L! Thanks for the reply.

I knew there was a lot of talking around Vit D, but I didn't knew it was proposed to be good for MS; so thank you. I'll probably listen to your suggestion and get myself some D3. Can I ask you if you consider it does an important difference for you? What do you consider is your most single treatment/medication?

Btw, do you know if it's okay to ask people to review their symptoms and give their opinions about them being MS? If so, would the General forum be the place for this? After many years of research, I feel I'd not losing anyone time here with some 'hypochondriac story'. There's very disease that could account for my symptoms and my problem is that I just can't put my hand on a decent/caring doctor to listen to me and check me up. I'm coping with the problem since 4 years now and I feel it's about time I know what's going on with me and take care of the condition.

Is anyone on the forum here known for being a kind of amateur medical savant that likes to review people cases from time to time?

Thanks
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Postby L » Tue Jun 29, 2010 9:21 am

MaybeFriend wrote:
L wrote:Hiya!
My suggestion for someone new to MS would be to take high dose D3!


Hi L! Thanks for the reply.

I knew there was a lot of talking around Vit D, but I didn't knew it was proposed to be good for MS; so thank you. I'll probably listen to your suggestion and get myself some D3. Can I ask you if you consider it does an important difference for you? What do you consider is your most single treatment/medication?

Btw, do you know if it's okay to ask people to review their symptoms and give their opinions about them being MS? If so, would the General forum be the place for this? After many years of research, I feel I'd not losing anyone time here with some 'hypochondriac story'. There's very disease that could account for my symptoms and my problem is that I just can't put my hand on a decent/caring doctor to listen to me and check me up. I'm coping with the problem since 4 years now and I feel it's about time I know what's going on with me and take care of the condition.

Is anyone on the forum here known for being a kind of amateur medical savant that likes to review people cases from time to time?

Thanks


The D3 - I don't find that it does anything, I'm just thinking that it helps prevent relapses.

I am waiting for CCSVI treatment. Having read all about it, I'd consider5 that to be the most effective way of combating the illness.

I had a Rituximab infusion late last year and this spring was my first without a major relapse.

But, yes, ask about symptoms in the general forum. Quite a few have done that in the past, checked if theirs was a typical range of symptoms. I'm sure that you'll get lots of replies.
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Postby jimmylegs » Tue Jun 29, 2010 3:49 pm

here at TIMS a member squiffy hosts chats sometimes, over at msrc.co.uk. i've sat in on one before. PM squiffy to enquire :)
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Postby MaybeFriend » Tue Jun 29, 2010 7:20 pm

The D3 - I don't find that it does anything, I'm just thinking that it helps prevent relapses.

I am waiting for CCSVI treatment. Having read all about it, I'd consider5 that to be the most effective way of combating the illness.

I had a Rituximab infusion late last year and this spring was my first without a major relapse.

But, yes, ask about symptoms in the general forum. Quite a few have done that in the past, checked if theirs was a typical range of symptoms. I'm sure that you'll get lots of replies.


Thanks for all. I wish you the best of luck for CCSVI! Didn't read too much about it, but it sounds to me like something every MS sufferer should be excited about.

Good luck,
Mfriend
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Postby MaybeFriend » Tue Jun 29, 2010 7:23 pm

jimmylegs wrote:here at TIMS a member squiffy hosts chats sometimes, over at msrc.co.uk. i've sat in on one before. PM squiffy to enquire :)
jimmy


Thanks for the tip. I'll do that and remind him of Jimmylegs appreciation in his judgment. ;)

Best,
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