just found the forum and love the layout. seems like you guys have an educated group and i'd love to be a part of it (if you'll have me).
i've been an ms sufferer since 2002. started with tingling and optic neuritis.
in 2005 i had my first attack. playing in a golf tournament that resulted in me being in the sun for 3 straight days. felt really bad and went to the hospital where i was clinically diagnosed by the hospital's neurologist. started on a 5 day cycle of steroids then rebif.
been on rebif since then and i have been having site reactions since they changed their formulation in '08 (i think).
1 site reaction turned into an infection. been getting more and more lately and will be switching over to avonex in the next few days (waiting for training).
as far as my physical state, i would say i am fairly lucky and blessed. my issues are as follows;
- weakness in legs (still walking but limited) unassisted
- constant tingling in hands and feet
- optic neuritis
- poor bladder control
- constant fatigue
- the 'fog'
- do a lot of word searching
- leg spasms
- shaking in my left hand when doing fine movements.
i have had a few 'flare ups' where i have slurred my speech, trouble writing or holding a pen, spasms, paralysis.
30 year old male, raised in southern ontario. married, 2 kids. i am pretty active (workout 4-5 times per week, weight training), eat pretty well, taking fish oil, vitamin d (2000ius), veggie greens everyday.
been giving serious thought to getting the liberation treatment done in india. my only thought on this is i feel that i am at a pretty crucial point in my ms case and this could help me. but at the same time, i can't imagine leaving myself further incapacitated with a family from either the ms or the procedure. scared is an understatement.
any input on any of this would be greatly appreciated.