Just diagnosed in Ohio

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Just diagnosed in Ohio

Postby jcbatt1 » Tue Aug 17, 2010 6:41 am

Hey everyone,

Glad to have found this site! I was just diagnosed with MS three weeks ago. It was something so completely unexpected as the symptoms were only going on for a few months. I took my first injection of Avonex this past Saturday. I knew absolutely nothing about MS when I was told it was a possible that I had it. I think its still a bit shocking when I think about it. I'm trying not to do the whole "why me" thing. It amazes me how many people I've talked to who know someone with MS. I have never met anyone with it until now. Or maybe I have and just didn't know it. Its been a little scary trying to figure out who to tell and who not to tell about my diagnoses. I was very hesitant to tell my employer not knowing if they would drop me from the insurance or not. Thankfully they have been very supportive.

Any advice anyone can give about what type of exercise is good to get involved in? I used to be very active at the gym until the symptoms came on, now its been several months since I have been able to do much. That's probably been the most frustrating thing for me. I lost a lot of muscle and feel just weak.

Thanks for reading, have a fantastic day!!

Julie :D
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Postby jimmylegs » Tue Aug 17, 2010 7:38 am

hi julie and welcome! the first little while with this is especially full of question marks. it's a scary time. you're in good company here though.

re activity, well for sure i personally was not able to do much at first.. i managed to get back to teaching skiing 2 wks after dx but i could not have done it without the chairlift rides to rest in between runs, and i could only teach level 3/4 because i could not hold my own ski poles!

after a year and a bit i decided to get in the pool and start working on my time to swim a kilometer. at first the loss of functionality as my core temp went up would deter me.

then i decided to just swim through it when my hands went floppy and it was fine. it was rough getting balance when i climbed out at the end. i think if i had kept it up the effects might have decreased over time. i haven't had money for the pool in a while, but i found it was good.

anyway, welcome again - lots to read up on here - what i appreciate most about my diagnosis is the crazy learning curve the last 4 yrs have been. happy reading!
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welcome to the forum

Postby miracles » Tue Aug 17, 2010 10:49 pm

i tried avonex when i fist got diagnosed & it made me super sick & didn't do anything good.

then, i got on the ldn -- & 3 days later i was able to feel my midsection & my left arm & hand (after not being able to feel them in 2 months)

also, google -- "zamboni ccsvi ms cure" -- you might be able to get cured of this soon!
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Postby jimmylegs » Wed Aug 18, 2010 8:18 am

zamboni does not claim to cure MS with CCSVI treatment. new readers should check out all the pros and cons, ins and outs, in the CCSVI 'stickies' and discussion topics. it's a complex subject.
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Postby jcbatt1 » Wed Aug 18, 2010 2:10 pm

Thanks to both of you for the suggestions! Miracles, what is ldn? Jimmy Legs, I will start reading up!
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