New & here's my story

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New & here's my story

Postby rita1965 » Sat Aug 21, 2010 6:27 pm

Hello, my name is Rita. I am 44 years old and live in MO.

I received a phone call from my family physician yesterday telling that the results from the MRI came back abnormal and white leisons where found indicating MS. He would be making an appt. for me to see a Neurologist very soon.


This all started a few weeks weeks ago. I kept thinking there was a smudge on my glasses. There was no smudge on my glasses and the vision in my right eye got progressively worse. Early one morning I woke up and could only see from the top portion of my right eye. It was like I was looking through a gray cloud. I called my optometrist and she dilated my eyes and said I had a clogged blood vessel and made an appt for me with a specialist a month away. My supervisor suggested I should see someone else ASAP. This Dr. diagnosed my eye problem as Optic Neuritis and mentioned MS a few times during the course of our visit.
I had been visiting my Family Dr. for other problems and mentioned what had happened with my eye. He immediately scheduled an MRI.

I have been reading alot about MS now and now I know that I haven't been being just lazy....I've been tired and depressed. I realize that I will need a support net. I am happily married, but right now my husband does not have a clue about how serious MS can be.
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Postby jimmylegs » Sat Aug 21, 2010 8:03 pm

welcome to TIMS, rita :)
reading is key, in my opinion. keep it up!
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Postby welshman » Sun Aug 22, 2010 3:22 pm

Hi Rita, being the husband of an MS'er is not easy - believe me !!!!
We don't know what's happening to our partner, just like you don't know what's happening to yourself. In my opinion, it is very important for you to communicate to him what you feel, what is happening to you; and it's also very important that he gets to know as much about MS as he possibly can.
Between the two of you, you'll get through it.
Take care of yourself, take care of him as much as you can, and he has to make sure he takes care of you.
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Thank you!

Postby rita1965 » Sun Aug 22, 2010 5:47 pm

Thank you both for your replies. I especially appreciate the response from the spouse's point of view. I will definitely remember what you said!!
Thanks for your support!!
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Newbie

Postby ScottieSue » Mon Aug 23, 2010 12:53 pm

Hi, I'm ScottieSue.

My husband was diagnosed with PPMS in 1997 and has declined to the point that he is pretty much a quadraplegic. I have read many stories from people with various stages but I am wondering if anyone else has progressed as far as my husband. I have him registered with Albany but I am afraid they may say he is "too far gone" for the CCSVI treatment. That is why I would like to hear from anyone who has the same degree of disability as my husband who may have had the treatment.
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Re: Newbie

Postby NHE » Mon Aug 23, 2010 5:49 pm

Hi ScottieSue,

ScottieSue wrote:My husband was diagnosed with PPMS in 1997 and has declined to the point that he is pretty much a quadraplegic. I have read many stories from people with various stages but I am wondering if anyone else has progressed as far as my husband. I have him registered with Albany but I am afraid they may say he is "too far gone" for the CCSVI treatment. That is why I would like to hear from anyone who has the same degree of disability as my husband who may have had the treatment.


You may be interested in reading this article.
http://www.thebarrieexaminer.com/Articl ... ?e=2668820

The accompanying thread...
http://www.thisisms.com/ftopic-12566-da ... asc-0.html

NHE
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Postby ScottieSue » Tue Aug 24, 2010 9:11 am

Thank you so much for the article on Barb Farrell. I am so glad that Mrs. Farrell is doing so well. It was so gratifying to read the story and about the good simaritan to made it possible. I would consider him to be a guardian angel sent to Mrs. Farrell.

I hope she and her husband continue to post her progress.
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Postby kollette » Tue Oct 05, 2010 7:08 pm

welshman wrote:We don't know what's happening to our partner, just like you don't know what's happening to yourself. In my opinion, it is very important for you to communicate to him what you feel, what is happening to you; and it's also very important that he gets to know as much about MS as he possibly can.


Very sorry to get in the middle of your newbie post, please forgive me. I just wanted to ask welshman, from a spouse's point of view.

What do you think would be the best thing to do if my husband wont really listen? I mean he clams up and put up his wall whenever I speak of anything involving MS. I know he would support anything and everything I wanted to do involving MS because that's what he has always said "whatever you want to do baby, whatever" and leaves it at that, but I kind of want to ask his advice, I want to be able to talk about my frustrations with him and when I cry about my frustrations, he only tells me that I am stressing myself out and making it worse. I just dont think he TRULY understands this.

What would be your advice, from a spouse who is going through it, as to what I should do? It has been 2 years, so I kind of dont think he is going to come around.
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Postby Mirry » Tue Oct 05, 2010 8:37 pm

Hi Rita

Welcome to the forums. Knowledge is definitely key in understanding MS, I have learned so much since joining. There is always someone with the same symptom and everyone is at different stages, so you will always find someone that can give you their opinion and point you in the right direction.

One thought, have you had your bloods run, I hadn't until talking to Jimmylegs and she is a wiz on that topic. I am glad I did as they were not normal and so am just waiting for some more to be run, then I am going to start taking vitamins and minerals to aid my shortfalls. My neurologist was so impressed with Jimmylegs info i gave him, he is running bloods and getting all his MS patients on vitamins/minerals.

Good luck and keep smiling
Mirry
"Just another bump in the road"
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