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Hi new to web site

Postby zadie » Thu Nov 18, 2010 6:23 pm

Hi to all I live in Australia and had my first symptoms in 2006 told 07 probably MS told 08 just waiting for another episode as more lesions on MRI head gone numb this week 2010 no surprises time for meds came to terms with MS 3 years ago . Love to hear some feed back on dmd know a bit Dr in ms clinic has left it up to me as he says its what suits me they are all about the same as far as effictive. I was thinking about throwing the pamplets up in the air and which one lands first is the one I will take lol anyway love to hear from people about thier experience
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Re: Hi new to web site

Postby NHE » Fri Nov 19, 2010 3:25 am

zadie wrote:I was thinking about throwing the pamplets up in the air and which one lands first is the one I will take lol anyway love to hear from people about thier experience


Making a more deliberate decision, as opposed to random chance, will be of benefit to you. When I was diagnosed in 1999 I was told essentially the same thing. However, upon looking over the brochures, I discovered that there was a pocket built into each one that contained the Doctors' Prescribing Information. This is the information and data, usually from the clinical trials, that the FDA has approved to be included with each medication. It's intended for doctors to inform them about the efficacy and side effects of the medication. However, I recommend that all patients read this information for the drugs they're prescribed. After discovering the "hidden" pamphlets, which are also available on the web, I was like the proverbial kid in a candy store. I went through each one with a fine toothed comb and looked up every word I didn't understand in a medical dictionary and wrote notes down. It took some time, but in the end I wound up knowing more about the medications than my neurologist and feel that I made the best informed decision for myself. In the end, there are important differences between the different disease modifying medications. For example, to name a few, side effects, dosing frequency, injection method which influences the occurrence of injection site reactions, efficacy, and long term risk. One thing to know if this project seems overwhelming, is that the information in the glossy brochures is cherry picked by each company to make their drug look as good as possible. However, ignore the smiling happy faces in the brochures and look at the data for yourself and then make your own decision.

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Postby zadie » Fri Nov 19, 2010 5:29 am

I dont think you got my attempt at humour
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Postby L » Fri Nov 19, 2010 2:37 pm

I can't help with the decision, I refused disease modifying drugs. They're all rubbish though, aren't they? I wouldn't take my word for it mind you, I am in a real state!

What I'd advise you to do is get tested for CCSVI and, or so it seems, never have to deal with MS again. See the CCSVI sub forum..

P.S. Your neurologist probably won't like the idea though.
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