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Postby Lydia_S » Wed Dec 22, 2010 10:29 am

Hi,

My name is Lydia and i was introduced to MS when i was a little girl from a discussion that a friend of my parents was having. I remember that i was terrified then by that disease and had it in my mind as something terrible.

When my boyfriend was starting to have the symptoms that i knew were indicating ms i was terrified again because it was happening to him.

He was diagnosed in 2006 and he was 25. His lesions are mostly in the spine and since then he had 4 episodes. He is using Rebif since 2006 and he is not happy about it. He has spasticity and isn't able to walk far or for a long period or get down from stairs without holding e.t.c. He has stopped playing bass, which he loved, because he doesn't have good sensation in his hands. Along the way he has lost a lot of things and it's not easy to him or to me. With this disease you come across many situations but we try to deal with every problem at a time.

Now i'm terrified only when he loses his courage...

I'm happy to join you, i've been reading quite a while and it has been really helpful

Thank you all
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Lydia_S
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Postby Lyon » Wed Dec 22, 2010 11:03 am

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Last edited by Lyon on Sun Nov 20, 2011 3:56 pm, edited 1 time in total.
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Postby L » Sun Jan 02, 2011 6:53 am

Hey

He does have a girlfriend who is looking out for him though, and I see that you are pursuing CCSVI treatment. Good for you and the best of luck to you both!

I first heard about MS because one of our neighbours had it. It was terrible to hear about the life that she led and, as a six year old,. I felt so, so very sorry for her. And now, many years later, I discover that she is in far better shape than I am! Hmph.
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Postby Lydia_S » Fri Jan 07, 2011 1:46 am

Isn't it funny?...in a way at least :?
Thank you for your good words. It's true that we are pursuing CCSVI, I know that I shouldn't but I've really put my hopes on that procedure. I believe that CCSVI is having a loud present and will have a louder future.
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