Hello from Europe

New members should feel free to introduce themselves here

Hello from Europe

Postby fivefifteen » Sun Jan 16, 2011 12:27 am

Hi everyone. I guess it's customary to post a short introduction so I'll try keep this brief.

My symptoms started in March 2010 with numbness and loss of coordination on the left side of my torso, the symptoms lasted only a couple weeks. An MRI showed information that pointed to MS however a lumbar puncture came back negative on all tests.

I had another brief flareup in July which I kept to myself but then things began to go rapidly downhill in November.

In late November I experienced severe numbness and loss of coordination in most of my body so underwent a further two MRI's which revealed several further lesions.

On Christmas Eve I experienced my first crippling flareup which rendered the right side of my body numb and my right leg almost useless. This flareup had almost receded when last Friday evening I experienced the scariest and most damaging attack so far.

The attack left me severely crippled and unable to walk, it also attacked my vision leaving me with a "vertigo" type inability to focus on anything. I have just spent four days in hospital where an intravenous drip of some hard-core steroid has corrected my vision and enabled me to get out of the wheelchair and stumble about like a marionette instead.

I am now back at home and waiting for my mobility to return slowly but surely. I have a consultation with my neurologist on Tuesday where we will discuss the best long-term treatment for multiple sclerosis. My neurologist had originally prescribed Copaxone but the hospital neurologist has suggested I need a stronger treatment due to the rapid evolution of my condition.

I've noticed that none of these introductions are particularly cheery and mine is no exception but I suppose like most newcomers I'm still pretty shook up, scared and looking for advice.

Without inadvertently breaking rules with product placement the only advice I can currently offer anyone suffering MS who needs to type as part of their job is to get a good speech recognition program (like the one I have used to compose this post).
User avatar
fivefifteen
Newbie
 
Posts: 2
Joined: Mon Jan 03, 2011 4:00 pm

Advertisement

Postby L » Sun Jan 16, 2011 5:53 am

Hello back from Europe!

Sorry to hear about your troubles. It's a really difficult time I'm sure. My advice would be to take a look at the CCSVI forum. It has worked very well for some people and it appears to work best with the newly diagnosed. http://www.thisisms.com/ftopict-12172.html Many people would disagree with me (your neurologist being one of them, more than likely.)

Good luck!
User avatar
L
Family Elder
 
Posts: 946
Joined: Sat Oct 20, 2007 3:00 pm
Location: The United Kingdom

Postby koopico » Tue Jan 18, 2011 2:10 pm

Hi Fivefifteen!

So sorry about all you're going through--I hope a different medication will help you start doing and feeling better.

Good luck to you, and hang in there!
User avatar
koopico
Family Member
 
Posts: 87
Joined: Tue Apr 27, 2010 3:00 pm

Postby Lydia_S » Wed Jan 19, 2011 6:09 am

Hi,

It seems that you had a bad start with ms...Is your doctor confident that it is ms, because if I read correctly your lumbar puncture came up negative...
User avatar
Lydia_S
Getting to Know You...
 
Posts: 20
Joined: Wed Dec 01, 2010 4:00 pm
Location: Greece

Postby fivefifteen » Thu Jan 20, 2011 6:05 am

Lydia_S wrote:Hi,

It seems that you had a bad start with ms...Is your doctor confident that it is ms, because if I read correctly your lumbar puncture came up negative...


Yeah she is sure now due to the evolution of my condition and the results of all the MRI's. Apparently the LP's can return negatives even on MS.

She is sending all my scan results to a specialist next week to ask their opinion on the right treatment.
User avatar
fivefifteen
Newbie
 
Posts: 2
Joined: Mon Jan 03, 2011 4:00 pm


Return to Introductions

Who is online

Users browsing this forum: No registered users