Hello - From the Gray State - Ohio

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Hello - From the Gray State - Ohio

Postby SBSB » Sun Jan 23, 2011 3:00 pm

HI All,

Diagnosed in 2008. Copaxone for awhile, could not tolerate shots everyday, site reactions were horrible. On Avonex now, just did a follow up with the Doc, I thought I wasn't doing to bad,, we did the motor skills test, I failed. My balance has been getting worse but, I have been adjusting. He said, 'Sometimes there are issues with out having a noticed exacerbation'

So are they silent?

Going for MRI tomorrow, and JC virus test. He is considering Tysabri. I am REALLY uncomfortable with that.. I have looked at some of the blogs here, but have not seen any posts from someone who has gotten PML from it..

Any opinions, or additional resources is greatly appreciated.
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Re: Hello - From the Gray State - Ohio

Postby NHE » Sun Jan 23, 2011 9:55 pm

SBSB wrote:Going for MRI tomorrow, and JC virus test. He is considering Tysabri. I am REALLY uncomfortable with that.. I have looked at some of the blogs here, but have not seen any posts from someone who has gotten PML from it..


Here's one thread which discusses a PML case.

http://www.thisisms.com/ftopicp-139087.html#139087


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