Newly Diagnosed, looking to blog about it

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Newly Diagnosed, looking to blog about it

Postby MSBOB » Fri Mar 11, 2011 6:15 pm

Hi,

My name is Bob. I have MS. (*clap*)

I am going on Rebif tomorrow. I am going to "shoot" for the plus side of that 30% reduction of holes in brains. I am not terribly convinced though. I have read a lot about MS. I think if I can snag 15% less new holes in the brain, it will be worth at least a couple billion dollars, because I am worth it.

I have reduced my saturated fat intake to less that 10g/day. I drink cod liver oil now (molecularly distilled). I take lipoic acid, ginkgo, b vitamins, multi-vitamins, lots of fruit, Nuvigil, 5000u of Vit D3, and starting rebif tomorrow. I think I may start NAC as well. I have very good reasons for each. I will save the explanations. Most of this is covered in other threads. If not, I would be happy to elaborate.

If I get another piece of marketing material from Rebif... I swear. Everyone looks so happy in the pictures, it makes me want to go buy something from JC Penny.

Anyway, hello fellow people with MS. I hope to be with you all for at least another 8 to 25+ years. In that time, I hope to make a lot of money so that I don't end up as state property.

Life is good. I really do feel that way. It may be fleeting and impermanent, but that's a source of profound meaning. I wouldn't ask for it any other way.

Some of my initial questions were how many lesions are a lot of lesions? I got 20+ scattered through by brain and one big one in my spine. I don't feel too messed up, though. I can walk and talk and feel good beside the fatigue. I got the MRI because I had optic neuritis in the past, and some numbness and funny feelings in my legs about 5 years ago. Last November my face went numb for about 3-4 weeks. That is when I went to my first MRI in January 2011.

The MRI was bitter-sweet. I am glad that I am not imagining things. I am sad that it wasn't my imagination. I am sure many of you can relate.

I know that when someone writes this much, it is difficult to read.
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welcome..

Postby leetz » Fri Mar 11, 2011 9:53 pm

you will find an abundance of information on this site...very helpful and informative!

God Bless
GOD BLESS.... CCSVI treatment Dr. Siskin great doc....symptom's improved for about 3 week's (gait, balance, spasticity) now back to square 1...
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Postby Karazhan » Sat Mar 12, 2011 1:06 am

Welcome to TIMS!
I admire your optimism and sense of humor.
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Postby MSBOB » Sun Mar 13, 2011 10:29 am

Thanks for the kind words. I am really enjoying this site.


I am going to start taking NAC and I am trading in the ginko for green tea supplements.
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Postby MSBOB » Sat Mar 19, 2011 3:59 pm

Cordyceps

That was the last one.

I don't see anything that convinces me that it helps, and it is totally depressing me.

I am sorry to everyone here on this site if I have not been the most helpful or cheerful or least sarcastic. I told my mom about the worm therapy. She said, "Those poor little worms having to prove themselves." I thought that was funny.

My freaking eye has been twitching endlessly for months! I want to put a hookworm in it.

WTF

I think the Rebif is making me depressed. Whoever wrote that it was "crud" was right on. It is crud.

Thanks. I got to get off of this site. It is not doing me any good.

NAC will be helpful I think.

Anyway, the one thing that I have found that is working to make things easier is speed. Nuvigil is the only thing I have received that has been good to me. I give the Nuvigil folk a nice plug. I was expecting more, but it is good enough.
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Postby MegansMom » Sat Mar 19, 2011 5:41 pm

Geez Bob,
I know you don't " believe in CCSVI" but why don't you at least get screened for it?

Also please peruse the latest studies from the meeting in Bologne.

Good vibes sent your way.

MegansMom
Cat (Catherine Somerville on FB)
MegansMom
My 35 yo daughter is newly dx 8/19/10 (had 12 symptoms)
Dx with Type A CCSVI- 1 IJV & double "candy wrapper" appearance of her Azygos
Venoplasty done Sept 21, 2010
Doing extremely well-
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Postby Bender » Sun Mar 20, 2011 11:57 am

Dude, the MS is one thing but the doctors should be able to clear that Clap right up.
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Postby MSBOB » Sun Mar 20, 2011 7:36 pm

Bender wrote:Dude, the MS is one thing but the doctors should be able to clear that Clap right up.


I just read about it on Thisisclap.com, there is hope.
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