Another Newbie from NC

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Another Newbie from NC

Postby NCLizD » Sun Mar 20, 2011 6:29 am

Hi everyone! My name is Liz and I was dx'ed in september of 2010 with MS. Was dx'ed in 2008 with transverse myelitis and syringomyelia and dx'ed with 6th nerve palsy (double/blurry vision). I have been on Avonex but had to stop as the side effects knocked me down for 2 days. Am to start on copaxone this weekend (3/26/11) and am scared to death. Not sure I even want to do it. I would stop but have new lesions. Initial lesions fading away but new ones popping up. I stay very positive and upbeat and you would never know I am in constant pain every day. Still working two days a week until I hear from disability (2nd try). This is such a great site and am glad I found it! Looking forward to meeting people and gaining knowledge. Married 19 years, two wonderful teenage children!! Peace and Love...
"When weakness turns my ego up, I know you'll count on the me from yesterday" ~ Incubus

Courage is being afraid, but going on anyway ~ Dan Rather
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Postby jimmylegs » Sun Mar 20, 2011 7:17 am

welcome liz!
odd sx? no dx? check w/ dietitian
99% don't meet these. meds/lifestyle can affect levels
status can be low in ms & other cond'ns
'but my results are normal'. typical panels don't test all
deficits occur in 'normal' range
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Postby MS_HOPE » Sun Mar 20, 2011 4:40 pm

Welcome to TIMS, Liz. I'm also from NC, and there are others on this site as well. Hope you find it as helpful as I have, especially all the info and discussions on CCSVI (Chronic Cerebrospinal Venous Insufficiency) in MS. Best of luck to you.
CCSVI:  Making Sense of MS
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