I am a complete newbie, and read the newbie sticky, and don't want to do anything wrong, but this is the first ms group I've joined.
I had ON in 2004, and an neuro-optimoligist told me it was a ad case, but it should resolve its self without treatment. I was a first year law student and didnt have insurance, so nothing was cool with me. Fast forward to a couple months before my 30th birthday, december 2010 I get up to go duck hunting one morning and though it's cold, my left foot never thaws out. With in a week or two, it was in my right foot, and has now climbed my trunk to my mid chest. I notice lherrmitte's too. As an avid outdoorsman, my dr. tells me at that time that it has to be spinal, but to rule out ms I need to have an MRI of my brain. It comes back clear. He decides to get the entire spine a couple months later, and that one comes back as a single lesion "characteristic of MS".
My doc sends me to a spinal specialist, who sends me to a neuro that he deals with a lot. This has been a six month process and now my fingers are numb too. This neuro tells me that it is ms, but only in my spine. He sees what he believes to be 3 or 4 other lesions throughout my spine, and none on my brain. My ON eye still bothers me for a week or so a year, but I still seem to have all of my strength on the numb limbs. My NMO test has been out for 2 weeks and i'm scared to death.
Are there any studies in relation to NMO and ms and treatment? If what I have is MS, that has progressed steadily over 6months, is now the time to get treated and tested for ccsvi if it's going to happen, or do I need to start a DMT?
I know this is long, but I'm in the middle of freaking out and I am not confident in any local neuros, and am scheduled to leave my home in Mytle Beach to go to Duke for a second opinion at the end of the month.
Any advice as to where i go from here would be great. I have spent 6months lurking and being upset, which is really not me. I'm a 6'6" 300lb "Manly Man", attorney, and I have spent the last 6 months freaking out and half crying myself to sleep like a middle school girl.
Any advice would be welcome.
"A gun is a tool, Marian; no better or no worse than any other tool: an axe, a shovel or anything. A gun is as good or as bad as the man using it. Remember that." -- Shane
Who is John Galt?