So lucky and yet unlucky. . . .

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So lucky and yet unlucky. . . .

Postby LokeRundt » Mon May 30, 2011 8:37 am

Hullo's to all. . . dropping in to give my greetings.

I've been so incredibly lucky. . .lucky enough to find myself in the situation I find myself now. I have been a traveler for the past 7 years. Worked renaissance festivals in the US, did a stint up in Oregon working on medical MJ farms, and 2.5 months ago got married to my wife who I've been courting for the past year and a half.

We flew to Norway (her home country), and the usual tired/fatigue symptoms I have felt previously did not leave after a week, vision became doubled, and I starting experiencing twinges/numbness in my right arm, with paralysis on that side of my face.

My longest hobby (since I was 6) has been juggling, contact-juggling, poi, and other skill/flow toys...while performing at a 17th May (national day) festival here in Norge, I reached my max, and had to stop. After going to the hospital, getting more scans/tests than I knew existed, the diagnosis comes back as MS. Did 3 day treatment of IV steroids, and prescribed Copaxone.

Been on the daily shots for 4 days now, having some relief of symptoms (the doubled vision still remains...it's not as bad right after I wake up from a good night's sleep).

But now I'm in a fairly effed situation...I'm looking at having to change my residency to a new country, my wife and I live in an RV and live off of busking during weekends in the summer, and now I'm unable to work regularly (I can still go for a couple of hours, but I'm totally wiped afterwards). Thankfully, because my wife and I are married, I get the same rights for financial & medical support from the state...

This has taken my longest love from me, and yet I couldn't have had better circumstances in the timing of my diagnosis. I should be extremely grateful/relieved...and yet I can't seem to find the happy. I am extremely thankful for my strong and loving wife, and having the history that I do with tattoos/piercings, the daily medication isn't too daunting. But yeah. Here I am

-K-

P.S. I'm getting the cd with my MRI images mailed to me here. . .I'm thinking of making an animated video highlighting the lesions with large demonic font stating "My name is Lesion, for we are many"

I want to punch every friend and family-member that tells me they're praying for me, or suggesting essential oils, chinese acupuncture, aura/chakra-cleansing. I know they mean well, but seriously.
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LokeRundt
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Re: So lucky and yet unlucky. . . .

Postby Karazhan » Mon May 30, 2011 1:33 pm

LokeRundt wrote:P.S. I'm getting the cd with my MRI images mailed to me here. . .I'm thinking of making an animated video highlighting the lesions with large demonic font stating "My name is Lesion, for we are many"


I would love to see that! I have no talent for drawing whatsoever but I have all these images in my mind of MS related cartoons/animation.
I bid you a bittersweet welcome to our forum. Please don't think your life is over or that you have no future. The odds are in your favor that you'll have many productive years ahead of you.
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Karazhan
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Postby LokeRundt » Tue May 31, 2011 10:09 am

Thanks for the welcome.

So there seems to be some issue with the insurance, going to make some calls tomorrow, crossing fingers that I'll still be able to get the medication.

I'll be sure to post the animation once it's completed
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LokeRundt
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