Hullo's to all. . . dropping in to give my greetings.
I've been so incredibly lucky. . .lucky enough to find myself in the situation I find myself now. I have been a traveler for the past 7 years. Worked renaissance festivals in the US, did a stint up in Oregon working on medical MJ farms, and 2.5 months ago got married to my wife who I've been courting for the past year and a half.
We flew to Norway (her home country), and the usual tired/fatigue symptoms I have felt previously did not leave after a week, vision became doubled, and I starting experiencing twinges/numbness in my right arm, with paralysis on that side of my face.
My longest hobby (since I was 6) has been juggling, contact-juggling, poi, and other skill/flow toys...while performing at a 17th May (national day) festival here in Norge, I reached my max, and had to stop. After going to the hospital, getting more scans/tests than I knew existed, the diagnosis comes back as MS. Did 3 day treatment of IV steroids, and prescribed Copaxone.
Been on the daily shots for 4 days now, having some relief of symptoms (the doubled vision still remains...it's not as bad right after I wake up from a good night's sleep).
But now I'm in a fairly effed situation...I'm looking at having to change my residency to a new country, my wife and I live in an RV and live off of busking during weekends in the summer, and now I'm unable to work regularly (I can still go for a couple of hours, but I'm totally wiped afterwards). Thankfully, because my wife and I are married, I get the same rights for financial & medical support from the state...
This has taken my longest love from me, and yet I couldn't have had better circumstances in the timing of my diagnosis. I should be extremely grateful/relieved...and yet I can't seem to find the happy. I am extremely thankful for my strong and loving wife, and having the history that I do with tattoos/piercings, the daily medication isn't too daunting. But yeah. Here I am
P.S. I'm getting the cd with my MRI images mailed to me here. . .I'm thinking of making an animated video highlighting the lesions with large demonic font stating "My name is Lesion, for we are many"
I want to punch every friend and family-member that tells me they're praying for me, or suggesting essential oils, chinese acupuncture, aura/chakra-cleansing. I know they mean well, but seriously.