This Is MS Multiple Sclerosis Community: Knowledge & Support

Hello, My name is Bill, I am from Ireland, now living in Canada. I have PPMS. I use an electric wheelchair now, however, it means I always have a seat, when others are left standing lol. I am married 35 years to a wonderful woman, I couldn't manage without her, MS has effected my upper limbs too, which makes life a bit miserable, but you must play the hand you're dealt in life,right ? I don't let my disability keep me back from enjoying my life with my wife and family. I love these big cruise ships, I've been on a few, and as long as the money holds out, I'll try to make another one. I have a great deal of pain, and take many medications, including Morphine, doesn't help a lot, anyone out there with the same problem ? Not all MSer's end up like me, so don't worry, just do what you can and keep laughing. As my friend Andy (also PPMS) always says " Have wheelchair will travel" and as I always say, " I'm still laughing"......Bill [/b]

Hello all, I'm the guy Bill has mentioned above, Andy is my name and I live about 2 miles from the beach in the south on England, UK and about 70miles from London.
As Bill says my motto is "have wheelchair will travel". the only reply to that is "rolling along on my wheelchair" (wagon) and I keep rolling along.....LOL
Seriously though I only use my wheelchair when I need to, walks to shops, I can still walk around the house and short distances with the aid of two sticks. I was dx PPMS same as Bill in 1995, on no meds as my neuro says there are none but I see that there are a few of you on certain meds, I'm thinking of the LDN so I will have to ask my neuro next time I see him.
The USA seems to be more up to date on meds etc than we do over here in the UK.
Regards to you all and as Bill is always sayin "keep smiling" ...Andy

A big hello to Bill and Andy. I must say that both of you guys sure do seem to have a great attitude. I see so many that become so miserable with what life has handed them. I do understand how easy it is to feel sorry for oneself but that just does not make matters better. I was going to respond to Bill about the LDN and noticed that he was taking Morphine which I don't think can be taken with it. I just wonder if by taking the LDN you might not be able to eliminate some of the pain that goes along with your MS thus eliminating the need for the morphine. I am not a doctor so therefore do not know what could possibly be replaced by the morphine. You might look into it. As far as Andy comment about the US being more up to date. You must understand that it is really only one doctor that started all of the experimenting with this drug. Most doctors here have never heard of this therapy but hopefully it will change. You really only need a forward thinking doctor who is willing to prescribe it to get on it. Good luck to you cuz I think the LDN will help any kind of MS. Symptoms are not guaranteed to be helped. The main function of it is to halt any further progress of the disease and if that is what it does then I am a happy camper. Good luck to both of you and again...welcome to the group. {{{hugs}}}

Hello Bill and Andy. It is so nice to meet you both! I can see why you share a true friendship and how supportive it is for you both while you struggle with PPMS.

I also find your willingness to share your ups and downs and your positive attitude, very encouraging. Hopefully, if you are ever feeling less then positive, we will be able to return the favor, by encouraging you both, in return.

I will look forward to reading your future posts, I think I could learn so much from both of you.

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Bonnie

Hi all, My name is Kim. I am 43 and DX in 99. I have been on Avonex ever since.

I have been married to a wonderful guy for 18 yrs. and have two teenagers. My daughter is 17 and my son will soon be 15. They keep me busy.

I work two jobs and am a very busy woman. I had a very bad relapse last year that put me down for almost 6 months.....went from a walker to a cane...months of PT...finally back to almost normal.

Nice site, very informative. Take care.....Kim[/b]

Greetings!

I just got word of this new site and I "ran" over to check it out. Looks great and am looking forward to participating.

Let's see... about me... I was diagnosed with RRMS in July of 2000.

I'm 35 and married to a very wonderful man. We just celebrated our tenth wedding anniversary!:lol: We have a son who is 2 1/2.

That's about it. I've only had one cup of coffee... so I can't think straight yet

Cheers,

Niko

Hi, my name is Nancy and I've had MS since 2000. I'm on Rebif. So far so good. Nice to meet you all.

It's a pleasure to read introduction posts from you, Kim, Niko and medic228. Kim you work TWO jobs? HOW do you manage that? Niko are you on one of the ABC's? medic, glad the Rebif is working for you.

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Bonnie

Bonnie --

Hello

I'm currently taking Betaseron. It seems to be doing very well for me. Haven't had an attack in quite some time. I take Amantadine for the fatigue.

Cheers,

Niko

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"Avoid making irrevocable decisions when tired or hungry." -- Robert Heinlein

Bonnie my full time job is very sedintary, and my part=time job is only 2 to 3 nights a week. I work the 2nd job for mentally and physically challenged adults.

It is more physical but a very rewarding job that I just love. I don't know some days how I do it. I work 2 to 3 days a week both jobs and have my weekends off.

My kids often say don't bother Mom she is recharging her batteries.
My husband wants me to stop the 2nd job. My bad relapse last year made me off work for 6 months and .......things got very behind financially.....soo we are still catching up.

Thanks for the welcome........Kim

Hi, My user name is OneEyeBlind and my real name is Karen. I was just diagnosed as having MS on 1-8-04. Haven't started treatment yet. Not sure which to try. Any Sugestions before I get started? I am not even sure which type of MS I have yet. You can read my story in my first journal entry (warning: its long!) I have been keeping a journal of my own on the pc and just cut and pasted it in.

Can anybody tell me what I am up aganst? I am a bit scared!!

Hi all, and Happy New Year!

I'm BrendaH and was diagnosed in 1998, but have had symptoms at least since 1996. I am 43 (just had a birthday 2 weeks ago!), married, 2 daughters ages 15 and 11, and live in Paris, France. Have been on Avonex and Rebif for the first 2 years after diagnosis, but seemed to get worse on those. Changed to Copaxone in Oct. 2000 and was stable until about a year ago when I started having dizziness again, and then several new symptoms popping up now and then, some of them not disappearing. May be time for Novantrone, or something else.

I came to this site from a link on an MS support group I read once in a while. Always good to meet new friends!

A bientot,
Brenda H.

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*Courage is the power to let go of the familiar*

Hi there:

My name is Maria and I just found this site.. I like it.

I am RRMS (well, so we think), dx'd in August 2000 but had my 1st episode in 1996 with a nasty bout of ON.

Tried the interferons, but cant tolerate them, tried copaxone but have a MAJOR allergy to that.. hmmm. not on ANYTHING now. I guess I am waiting for Antegren!!

Hope to be back and see this place get going!!

Healing Hugs

Maria