Good Evening...

New members should feel free to introduce themselves here

Good Evening...

Postby InHislove » Fri Jul 15, 2011 10:11 pm

:? I am not sure I belong here (yet)... I have not been offically diagnosed with MS, my doctor is just thinking about it. From what I've read - I am really not looking forward to the long drawn out process. I've already been accused of having a pscyological disorder and being a hypocondriac. The best one yet "oh it's just stress"! really now!:roll: The symptoms I'm experiencing are horrible! however I'm sure you understand.
I mean right now I'm having a hard time typing - the nerve pain in my hand is excruciating. I'm sorry to introduce myself in such a complaining way (which by the way I've now officially changed my name to Mrs. Complainer!)

I'm so frustrated - Brain MRI came back "clean" or "normal". AAGGHHH. I'm not making the symptoms up and I'm actually starting to get scared! I thought to myself - self maybe it's peri-menopause? Fibromyalgia? Then I saw a Youtube video explaining that most people receive a diagnosis of Peri - Men before MS diagnosis and it goes on to say do not accept it!
So I say ok self - now what?

I'm tired of test, blood tests, MRI's, CT scans, poking and prodding, appointments have become my norm and really I am feeling done! Just this winter I was diagnosed with a seizure disorder (now controlled by meds... thank God!)

I think today is one of those "down days" (well actually the start of my down week) I have about 5-7 days where I feel great, "normal". Then about 7ish days of down with overwhelming fatigue, nerve pain in my legs, left side numbness and weakness (so bad that I can't even squeeze a dish cloth with left hand), leg cramps, balance issues, a grey spot in my left eye that I can't blink away, skin pain, hard time concentrating, my legs feel like jello and after climbing a flight of stairs that just the day before were a breeze now leave my legs feeling heavy and tired! But remember this is all in my head and I'm a hypochondriac! <--- perhaps I'm a bit bitter because of this last year of hearing this and it's anxiety and or stress. Perhaps it's because I'm a 38 year old woman :?:

Thank you for letting me ramble... any support/suggestions about doctor visits or even what I could have would be amazing!
User avatar
InHislove
Getting to Know You...
 
Posts: 23
Joined: Fri Jul 15, 2011 2:00 pm
Location: Canada

Advertisement

hello...

Postby leetz » Fri Jul 15, 2011 10:25 pm

hi, i can only speak for myself here but it took me a good 7 years and alot of "you are crazy" type of doctor visit's...i too initially had a clean mri..make sure they check your spine on the mri as well...got a lumbar puncture (which i think made me alot worse) but gave a diagnosis...no recommendations on that one! believe your body...that is my best advice...

God bless you!
GOD BLESS.... CCSVI treatment Dr. Siskin great doc....symptom's improved for about 3 week's (gait, balance, spasticity) now back to square 1...
User avatar
leetz
Family Elder
 
Posts: 294
Joined: Tue Oct 06, 2009 2:00 pm

Re: hello...

Postby InHislove » Sat Jul 16, 2011 4:50 pm

Thank you!
leetz wrote:hi, i can only speak for myself here but it took me a good 7 years and alot of "you are crazy" type of doctor visit's...i too initially had a clean mri..make sure they check your spine on the mri as well...got a lumbar puncture (which i think made me alot worse) but gave a diagnosis...no recommendations on that one! believe your body...that is my best advice...

God bless you!
8O
User avatar
InHislove
Getting to Know You...
 
Posts: 23
Joined: Fri Jul 15, 2011 2:00 pm
Location: Canada

Postby munchkin » Sat Jul 16, 2011 5:11 pm

hi

I also got the it's stress, you have kids and work full-time you should be exhausted. It took 6 years and the Dr's were testing me for epilepsy (I still don't know how that one came about).

It takes time and leetz is right, you know your body. Keep a journal and log in what's happening every day and take it to your next appointment. This way you know what, how often, and when things are happening.

Allow yourself to get angry in private or here and then talk to your dr's in that calm voice that we all have.

take care
User avatar
munchkin
Family Elder
 
Posts: 309
Joined: Fri Apr 01, 2011 2:00 pm
Location: Canada

Postby InHislove » Sat Jul 16, 2011 9:23 pm

Thank you munchkin... a daily diary, why didn't I think of that - had to do that for my seizures. Wonder if there is an online one?
munchkin wrote:hi

I also got the it's stress, you have kids and work full-time you should be exhausted. It took 6 years and the Dr's were testing me for epilepsy (I still don't know how that one came about).

It takes time and leetz is right, you know your body. Keep a journal and log in what's happening every day and take it to your next appointment. This way you know what, how often, and when things are happening.

Allow yourself to get angry in private or here and then talk to your dr's in that calm voice that we all have.

take care
User avatar
InHislove
Getting to Know You...
 
Posts: 23
Joined: Fri Jul 15, 2011 2:00 pm
Location: Canada

Hi!

Postby CL » Sun Jul 31, 2011 1:47 am

OMG! It is soooo wonderful to hear all of your stories and input. I too am fighting for a diagnosis of something...ANYTHING. Im 22 and have terrible symptoms. A LOT of what your mentioning. Numbness, tingling, extream pain, vision issues, balance, strength, horrid fatigue. And I just got a clean MRI and blood test. The neurologist just sent me away.

Its nice to find people who've been through this as well.
A diary helps! Not only the doctor to see the progression of symptoms....but helps you too. It shows patterns and triggers for the symptoms. Helps you keep everything clearer in your head.
User avatar
CL
Newbie
 
Posts: 7
Joined: Thu Jul 28, 2011 2:00 pm
Location: Northwest


Return to Introductions

 


  • Related topics
    Replies
    Views
    Last post

Who is online

Users browsing this forum: No registered users


Contact us | Terms of Service