I was dxd in May 2011 with parathesis from toes to waist. My GP referred me to neuro(who proved to be practicing MS care like it was a toothache)and a thoracic mri. It came back to be transverse myelitis. The next step was mri thorasic with contrast, no cancer! And then a bain scan revealing 12 lesions. The lesions justified a couple of years of brain fog, camoflauged with "new mom brain" and workaholic(6/week hairstylist) In January I lost my little bro 27 to a heroin overdose. I tried to be "healthy" in my grief process but the stress and broken heart were enough to bring on the attack mentioned. As it turns out I had a previous episode but didn't connect the dots. My daughter was about 8 months and I went numbish in my trunk right side. I WebMD'd it and diabetic issues came up so I decided taht it must be because I hadn't been good about taking my PCOS (insulin resistance)meds,metformin also happens to also treat diabetes. Symptoms resolved and I hadn't thought of it again....until the diagnosis I made no neurological connection.
Banding , my waist was wrapped in rubberbands.
Parathesis from waist to toes. IV solumel for 3 days and then weened off with pills.* weeks later, the complete sensation returnned..but I still fear I am a poor night of sleep away from parathesis.
Cognitive issues with memory and concentration, tested (-7) on t.o.v.a. ADHD test. I have ADHD in my family chemistry for sure but as a girl and a coper I found all kinds of tricks to help...but with lesions I couldn't control it..I was a senile 30 yr old.And headaches...better now than preceeding steriod IV treatment.
I had no history of UTI before cognitive issues or my daughter born in 2008. My hubby and I have been together for 10 years with no genital issues. I think it's got something to do with the chronic yeast infections I have had for the last 5 years. I can't figure out how to control them.
Chronic Yeast Infection, It seemed very obvious to me that there was a connection between sugar/ yeast infections and sugar(insulin) resistance) from PCOS before my MS diagnosis. I had read up on threelac to treat systemic issues...my OB just keeps prescribing diflucan..and that can't be good for my liver...
I have been eating so much vegan since my diagnosis and I lost 35 lbs...looking better that ever(silver lining) but I am def still on a journey finding the right dr's and wellness people. A lot of idiots in LA. So I did a 30 day raw vegan cleanse (Dr. Richard Schulze herbdoc.com) and it's just too unrealistic because I can't eat soy or beans per the best bet diet and I def don't want a neuro reation to lunch so I do vegan in the day and a small portion of white meat or fish in the pm
Baclofen , when needed for spasms or banding
Vitamin D omega 800 mg /dy
Currently trying to work in pilates, yoga, and acciupuncture to keep me well.
I go to USC Oct 10th to see a real MS specialist!!!!!!!!!!!!! I couldn't be more excited. My MS is currently considered mild/moderate(mostly because no one gives a shit if your MS symptoms are not currently mobility) and I want to limit this disease in whatever ways possible. It's so random and unpredictable..there is no comfort in my current RRMS diagnosis..it can evolve to Progressive? I respect a FOR NOW ...way of thinking.For now it is incurable...but I do believe that collectively we can make Dr's cure us all!
By coming together in my grief group I grew stronger and I believe I will gain more than a sigle great thing by joining this group of fighters.