At the age of 61 I was finally been diagnosed with MS on Sept 12, after having an episode of slurred speech, tierednes, and foggy vision 25 years ago where I was told I had a virus and years of pain & now finally losing my ability to walk without assistance. I'd been telliing countless symptoms to my GP for the last 5 years, who seemed to ignore me & when I did actually ask her if I had MS 2 1/2 years ago, I was told a flat "No".
Obviously I had stepped on her toes with my own dx as after that she seemed to hear me even less. When I told her about my increased bladder control problems, I was told that this is a typical post menopausal issue. And she made it quite clear from her tone of voice that she didn't want to hear about it anymore.
It was incredibly hard to keep going back to her and the thought of trying to find another GP was so discouraging especially with the pain and sleepless nights I was having from the constant tingling electric shock feelings I had in my back & legs. It was a nightmare.
After getting worse I was finally sent to a neurologist who ordered a thoracic MRI for which I had to wait 13 months as the 1st stage of my unlnown MS diagnosis
And now this neuro tells me he thought maybe he saw telltale MS lesions but didn't bother to ask for a brain scan right away.
This spring I went to my GP to report more symptoms: a dragging left foot, a fall when my left leg froze -things that she just couldn't ignore.
Sent to see the same neuro again and he ordered an brain MRI which took 1 month to get.
Sept 5 got a phone call from the MS clinic which I wasn’t able to answer before the machine picked it up and I heard the message telling me that I was to have an appointment at the MS clinic in 1 1/2 or 2 months. I got to hear that devastating news all alone at home.
Called them back to confirm what I had just heard & told them that I hadn’t had my consultation with the neurologist yet.
They refused to say whether or not I had MS as I hadn’t seen the neurologist yet, although it was pretty obvious.
I was diagnosed by neuro on Sept 12 told verbally that I had M S after results of brain scan done mid August. I was told that he had suspected MS the 1st time he saw me almost 2 years ago when he ordered a thoracic MRI and should have ordered a brain scan as well but he didn’t.
Then he said that when he saw the thoracic MRI last February that he thought perhaps he had seen a lesion on my spine. But he didn’t investigate any more. What was I? - chopped liver or more likely just an inconvenience - a woman 61 years old not worth bothering about.
I've had it with these doctors and I'd rather go to a walk in clinic than have to deal with them again.
Now I've got my diagnosis in writing I will start working on getting a decent GP that doesn't ignore me.
I know our medical is covered by our Canadian gov't medical plans but it is insane that we can't switch doctors or get a second opinion because there aren't enough doctors.