Hi All!

New members should feel free to introduce themselves here

Hi All!

Postby CanuckChick » Wed Oct 19, 2011 7:31 pm

I have been reading all of the fabulous threads and wanted to say thanks and hello to you all. I am newly diagnosed and waiting for an appt. with a new neuro (my 4th one) who specializes in MS to begin treatment. Any thoughts on my med choices? I live in Canada, so cost and coverage are not issues as it is all covered. Many thanks and thanks for reading my post.
Jen
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Re: Hi All!

Postby daverestonvirginia » Thu Oct 20, 2011 11:43 am

I selected copaxone because of the low chance of side effects. Six years now and doing fine.
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Re: Hi All!

Postby euphoniaa » Thu Oct 20, 2011 12:24 pm

CanuckChick wrote:I have been reading all of the fabulous threads and wanted to say thanks and hello to you all. Any thoughts on my med choices? Jen


Hi Jen, and welcome! I've never taken any MS meds, so I don't have experiences to share, but I want to make sure you've found all the different treatment forums here at TIMS. http://www.thisisms.com/forum/ There are separate forums on most any med or treatment choice, with lots of information for each.

I hate to assume newcomers don't know how to navigate around here, :smile: but it took me a really long time to find my way when I first joined. And feel free to ask questions. Don't forget to try maximizing your health with diet and exercise, too.

Good luck!
Dx'd with MS & HNPP (hereditary peripheral neuropathy) 7/03 but must have had MS for 30 yrs before that. I've never taken meds for MS except 1 yr experiment on LDN. (I found diet, exercise, sleep, humor, music help me the most.)
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Re: Hi All!

Postby CanuckChick » Fri Oct 21, 2011 5:52 pm

Thanks euphoniaa. I have been reading those threads. I figure I will learn way more about the meds through the words of those taking them than the docs. Nothing beats first-hand experience.
Thanks daverestonvirginia. I think I'm leaning toward copaxone for that very reason.
Jen
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Re: Hi All!

Postby want2bike » Sat Oct 22, 2011 7:38 am

If you are considering med there has been a study done in England concerning them. Here is a link to the study.

http://www.facebook.com/notes/ccsvi-in- ... 1295097210

http://www.youtube.com/watch?v=GJyQTTZr ... _embedded#!
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Re: Hi All!

Postby northerngirl9 » Thu Oct 27, 2011 11:39 am

Hi Jen!

I've managed to avoid medications (hate needles!) for almost 20 years with MS. I started taking Amantadine January 2011 to help with ongoing fatigue and it has been a great help.

Good luck and stay strong...
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Re: Hi All!

Postby Ute » Sat Nov 12, 2011 2:56 am

Hi Jen,

a lot of decision which med is "helping" can be made based on MRI scans after being on certain drug for a while. I been on Avonex for almost 8 years now, and some 6 years ago got only one lesion in my brain. Side effects are pretty manageable for me, mostly it's depression.

Good luck with copaxone !

to northerngirl9: wow, very impressive ! wish you well


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Re: Hi All!

Postby jimmylegs » Sat Nov 12, 2011 1:50 pm

hey there, welcome to TIMS! i chose no meds, so far, but that was because i had a really good idea that my ms was a nutritional problem. subsequent research and bloodwork have proved that hypothesis. i second euphoniaa re maximizing health via diet and exercise (and supplements if needed). if you have questions about a diet/supplement approach, feel free to ask!
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