Welcome to the world of MS treatments... I of course am not your dr and have considerably less medical training and knowledge, but for me personally, I am not a "fan" of certain brain damage. I drew the line at Tysabri, that one was scary for me, with the potential for PML, not so much the death, but the irreparable damage you would live with for a non fatal case.csquared wrote:The doctor is not a fan of the potential toxicity.
You may be comfortable with the injections, I wasn't, and they (rebif) did not work for me. The current oral has been shown to be more effective, and there are no reports of bounce-back on stopping, so I would check if it is an option to take fingolimod until the "new orals" are available. I personally would not be holding my breath on their arrival, or that they are as effective with less potential toxicity.csquared wrote:He also noted that several more oral drugs will likely be approved in the first quarter of 2011.
Normally I don't think they are prescribed that way. But I and others here have said that they notice the difference on old symptoms as well, simply less so.csquared wrote:At this point, I haven't taken any steroids. Would doing so make any sense for symptoms that are now eight months old?
The standard treatment used to be one of the injectibles (CRABS) on a regular basis to avoid relapses, and an IV of steroids to manage a speedie recovery from a relapse when/if it did occur. That was the treatment prescribed for me when I was first diagnosed. Make sure you find out exactly what your steps are when / IF you experience your next relapse, no one took me explicitly through the steps beforehand.csquared wrote:but is it common to take both a maintenance drug and occasional steroids, or does each of these represent a discrete treatment approach?
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