Hi my name is Catherine, I was diagnosised in 1989 with R/R. It happened as I was driving down the highway in the passing lane. The entire left side of my head went numb. Drove myself to the local hospital after a bunch of neuro exams and(new to the market)an MRI, I was dx'd with MS. MS didn't fit into my schedule, being a working mother of 3. The numbness subsided after several months, but I still have tingling. Fatigue proved to be my biggest problem. I'll jump right through the years to now, I experienced several flare ups some big some small they include, bladder self-cathing, numbness,
double vision, depression and now imblance, all reminding me MS couldn't be ignored.
I have been on several MS drugs, Avonex, Copaxone and Zenapax, I experienced problems with all of them. Last week a had a nap, when I woke up I couldn't stand up. My legs were strong but I was falling back and side to side. I had not been sick, all I could think is that I ws having a Flare, off to the Emergency Room. Needless to say the drs and nurses were puzzled. They did an MRI and found a new 7mm lesion left side of brain in the Corona Radiatia, I thought for sure this was the problem, but a "Resident Neuro" told me 'No that lesion is not in your stem or cellebrium, it is in the Sensory part of the brain and it is new since June, but don't worry about it. You know you have several lesions, almost too many to count". Needless to say I didn't let her off with that answer, I said I am concerned with a new lesion anyplace in my brain. I have had many many MRI's and Dr appts. the last several years I have not been told I had a new lesion. I am finally on IV Steriods after 7 days, my own dr. is going over the MRI. I am on a walker, so frustrated with the medical profession right now. The internet is providing me with more info than the drs., I read you can have imbalance from a lesion in the corona radiata of the brain, because many signals travel through this area and your "sense" of balance can be off if the 8th cranial nerve has a lesion.
Ok sorry for going on, if anyone has any in put I woud greatly appreciate it.
Gentle HUGS! Cat