Hey, Im new here and kind of the minority

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Hey, Im new here and kind of the minority

Postby truman861 » Fri Nov 25, 2011 11:25 pm

Hey all,
my name is John, I am 33 yo and dx with rrms 6 mo ago,
I jnow this condition is typically associated with women more than men so i feel like a minority but looking to see what this site has to offer. I currently belong to another site - patientslikeme but just wanted to get more resources.
I have been essentially pushed out into pasture and retirement even though Im only 33. used to work as a firefighter paramedic but can no longer do the job and dispatch just isnt an option due to speach issues. (kinf of an important asset to have in dispatch).

Anyway, just wanted to say Hi to everyone and see whats up

John
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Re: Hey, Im new here and kind of the minority

Postby jimmylegs » Sat Nov 26, 2011 6:24 am

hi john welcome to the site we won't pick on you bc you're a boy ;) this site has lots to offer, enjoy!
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Re: Hey, Im new here and kind of the minority

Postby janekathleen » Sat Nov 26, 2011 8:02 pm

We like men!
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Re: Hey, Im new here and kind of the minority

Postby civickiller » Sun Nov 27, 2011 3:09 am

there are more men with ms than your probably thinking
of the 8 pwMS that i personally know, only 3 are women so 5 men.
oh im 29 been retired for 8 months already, your not alone

welcome to the forums
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Re: Hey, Im new here and kind of the minority

Postby MSBOB » Sun Nov 27, 2011 4:22 am

I am a 32 year old man.
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Re: Hey, Im new here and kind of the minority

Postby MarkLavelle » Thu Dec 22, 2011 4:16 pm

Howdy!, from another newbie guy (55yo, diagnosed 3/2011).

Good luck,
Mark

RRMS dx 3/3/11; Copaxone since 12/1/11
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Re: Hey, Im new here and kind of the minority

Postby Laowai » Tue Jan 31, 2012 5:58 am

Hey John. I'm new to this site also. 33yr old male who used to be incredibly fit and now has problems walking 500 ft. I feel ya...

Just wanted to get in touch with some more folks like myself. Hope you are well and feel free to respond to any posts of mine or just say hey.
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Re: Hey, Im new here and kind of the minority

Postby Scat89 » Tue Jan 31, 2012 8:36 am

What's up guys, I'm 33 yr old male who's not yet diagnosed, but have all the symptoms and the mimics have been ruled out. I used to be very fit as well, I'm still doing the best I can to work out almost everyday, but I'm not the same. It's good to know you're not alone.
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Re: Hey, Im new here and kind of the minority

Postby MSBOB » Tue Jan 31, 2012 7:54 pm

It looks like we got a little fraternity. We should have a secret sign, as to recognize each other. Let me know if you got any ideas.
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Re: Hey, Im new here and kind of the minority

Postby Jj12010 » Sat May 09, 2015 9:34 am

Hi I'm also a firefighter with MS. Work has recently become aware of condition. I have been there 17 years. They recently brought me back but now having issues with co workers. Feel like I'm being watched by a bunch of Hawks. I made statement to one and now have been put on sick leave. We do not dispatch or have light duty. I'm afraid I'm going to be thrown out.
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Re: Hey, Im new here and kind of the minority

Postby Youarethecure » Sat May 09, 2015 12:13 pm

Well, now I feel like I am the truest minority, not only am I male but I am only 26 years old. I had issues at 19 years old too.

Try and stay ahead of the game and do everything you can do to slow it down. Diet, exercise, medication, nutrition, chiropractic care, and lifestyle modifications have all been proven to help.

Best wishes,

Chris
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Re: Hey, Im new here and kind of the minority

Postby singleprego » Thu May 14, 2015 7:30 pm

38 y/o female, RN, dx Sept 2014. Get vibrations in my legs & weakness, lots of fatigue. Fine motor coordination declining (important when drawing up meds), visual acuity steady decline. I went from an active floor nurse to the manager. I think that MS was brought on by the stress of the management position. I also wonder if the rapid change in my activity lvl (standing job x 10 yrs to a stressful desk job), hence lack of nerve stimulation, plays a role.

At this time I refuse treatment. How would I know if a medication is reducing my relapse rate if I have never established a relapse rate without tx?

It is, what it is. The only thing we can change is how we react to it.
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Re: Hey, Im new here and kind of the minority

Postby DavidRaymondGay » Sun Aug 16, 2015 2:28 pm

Hello all,

I am 26 and was diagnosed at 24. I am also a male, go figure!

I completely agree with singleprego, over half of the battle with MS is keeping positive. There is only so much you can control, and living each day to its fullest is important. The real question is what can you control?

What you eat.
How you keep in the best shape as possible. Things like yoga (even though us men hate them) really help.
How you stay positive (meditation is more practical than you think)
Who you spend your time with. (Negative people will drag you down)

That is just a few.

Look forward to talking with you guys soon,

Dave
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Re: Hey, Im new here and kind of the minority

Postby Youarethecure » Mon Aug 17, 2015 5:47 pm

Ohhhhh sooooooooooo true David, so true. We r literally in the same boat lol. I am 26 and male.

I eat very clean and as healthy as possible with limited cheating. I am in incredible shape physically. I weight lift and do cardio five days a week (for over 7 years now) and work as a chef/pizza man 50+ hours a week. I have cut ties with all the negative people in my life and stay as happy and positive as I can.

Do you take medication too? I was on copaxone for over a year but I became allergic to it and have been considering going med free. I have been for the last 2 months now with no issues.... so far lol.

Best wishes,

Chris
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Re: Hey, Im new here and kind of the minority

Postby cheerleader » Sat Aug 22, 2015 2:36 pm

Hey guys,
Welcome to you all! Keep moving and doing what you're doing to stay well.
My husband is 52 with MS diagnosis for many years, and still jogging.
He made a lot of lifestyle adjustments, and looks at his MS as a vascular condition---so heart health/nutrition is essential for him. http://ccsvi.org/index.php/helping-myse ... ial-health

Here's our friend Matt---he's had MS 20 years, with no progression. He started this site, MS Hope, to give inspiration to others with MS. http://www.mshope.com

And another man with MS who is working hard to help others is Dr. George Jelinek. Love his program and ideas about health. http://www.overcomingmultiplesclerosis. ... r-Jelinek/

You are not alone. Hope these other men with MS inspire you! take care,
cheer
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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