Hi I am new here & I have so many of your symptoms. I have been looking for an answer since 2004. Started with a eye examination, I had a Visual Field done for the very first time, they looked shocked when they saw it, I have a Visual Field Defect in my right eye, I never noticed it, I was just in for a routine eye examination to get some more contacts. I was told to go get an MRI which I did, checking for a tumor or MS. Only puzzling symptom I physically felt was burning sensation in my back, like I had a sunburn, never got an answer for that. I have had off & back on again symptoms really starting in 2007 after my son was born. Burning Sensation, Headaches, Tingling in my hands/feet, burning sensations on finger tips or whole hands at times as if I laid them on a stove top burner. My hips/buttocks have had a deep aching pain in them since about 2007 after having my son, dizzy my whole pregnancy, acutul passing out, still get dizzy, not as bad now though. In December my elbow started hurting really bad, has not gone away, has moved all the way down to my hands now, an aching feeling, hurts to just pick a bottle of water up or any motion, feels like something is crawing in my arm & hands now, tingling feeling. Last month I woke up & could not move my left arm, my shoulder hurt so bad, got a cortizone shot, went away after a few days. My left ear I have a hard time hearing out of it, seems clogged. I woke up one morning & could barely walk on my right leg, I limped for days then went away. I forget everything, I mix up my words, a little bit of incontinence about 3 times a month. In 2009 I found out my cousin, my moms sisters son whom is my age was diagnosed with MS, very eerie feeling when I heard that.........
I have had xrays, mri's, evoked potentials, cat scans, blood work............Last Brain Mri was in 2009, Last Mri of the Upper & Lower Thorasic Spine was in 2011, Last Mri of Lumbar Spine was in 2012, just a few weeks ago, Last Cat Scan 2011, Last Evoked Potential 2011, I have had 2 never conductors tests, last one was in 2011, All tests were Normal, Except:
Lumbar Spine, mild disc bulge, on disc L4-L5.........that does not account for all my symptoms..........I have seen 5 neurologist, one specialized in MS, Orthopedics, Rheumotologist just last week whom states he thinks I have Fibromyalgia because they cant find anything else wrong..........he did not test or anything, just assumes I have that. So now I'm doing Physical Therapy, I'm frustrated because I want to know why I have to do Physical Therapy, why am I having these issues & they cant see them from any test run, 2 bad hips, 2 bad arms & hands!!! Now for my back which I do not feel as much pain in at all. These have all crept up on me just this year. Alot of my symptoms are not symptoms of Fibromyalgia. Why not do another Brain Mri since my last one was done in 2009 or even a lumbar puncture. Very frustrated here. I am 41 by the way.