Hi....Newly Diagnosed

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Hi....Newly Diagnosed

Postby melissa7 » Thu Mar 08, 2012 4:12 pm

Hi, my name is Melissa. I have recently been diagnosed with Relapsing/Remitting MS. I think I've probably had it for 6 years or so. Both my legs went numb (weird sensation feeling) about 6 years ago. Thought it was my back. MRI showed nothing wrong with back...and it went away in a few weeks.

This last year I have experienced vertigo, double vision and facial paralysis. Facial paralysis 3 times. So they sent me for an MRI looking for a cranial nerve tumour and instead showed lesions on my brain. I had been numb on my right side for a few months and I attributed that to my back too. So after another MRI a few weeks ago showing 2 lesions on my thorasic spine (cervical had none)....the Neurologist told me I had MS. They sent me to a neurologist who specializes in MS. By this time I had developed "drop foot?" and neurologist put me in hospital for 3 days of steroids. I'm a diabetic also so it had to be monitored in the hospital.

Foot is all better now and numbness is going away. Today I took my first shot of Betasaron. It's been 6 hours and the only thing I have had was a brief moment of nausea and I broke out into a sweat so that my hair was soaked underneath (but no fever).

Found out today that my vitamin D level is 7.2. I take it that is extremely low.

This is scary....I'm trying not to think negatively. My MS neuro told me that 75% of the people who get this are never disabled. And with the new medicines there is more hope to stay active. But sometimes it's hard not to think about the worst. I know that no one in life has any guarantees, so it is just better to be thankful for today and try not to worry about tomorrow.

I have started taking supplements and working on losing weight. I figure those two things can help me in this fight.

Thanks for listening. It's good to talk to people who are experiencing the same thing.
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Re: Hi....Newly Diagnosed

Postby mrbarlow » Thu Mar 08, 2012 4:49 pm

7.2 nmol is extremely low. I take it you are not a sun worshipper or oily fish fan. Seriously that is the first thing to address Vit D deficiency. At that level I'd start with at least 5000iu a day. Add in some magnesium.

Plus;

A good all round multivitamin
Omega 3 lots - (supplements & oily fish)
Zinc
B complex and B12
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Re: Hi....Newly Diagnosed

Postby NHE » Thu Mar 08, 2012 6:08 pm

mrbarlow wrote:7.2 nmol is extremely low. I take it you are not a sun worshipper or oily fish fan. Seriously that is the first thing to address Vit D deficiency. At that level I'd start with at least 5000iu a day. Add in some magnesium.


If the initial units on the vitamin D test were in ng/mL, then 7.2 ng/mL = 17.9 nmol/L. The conversion factor is 2.496. 17.9 nmol/L is still really low. Ideal 25(OH)vitamin D3 levels are around 150 nmol/L.


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Re: Hi....Newly Diagnosed

Postby want2bike » Thu Mar 08, 2012 8:26 pm

Dr. Swank spent 50 years showing that his diet was effective in controling MS. The paleo diet that Dr. Wahls uses shows good results. It is all about what you put in your body. Check out the diet section on this site.

http://www.overcomingmultiplesclerosis. ... gram/Diet/

http://articles.mercola.com/sites/artic ... nking.aspx
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