What a great question to ask , IMandrea! I attended the ISNVD conference and the SIR conference and the AAC conference and will be attending the Hubbard Conference in May in San Diego. having listened to about 80 individual presentations on CCSVI in the last year and I could not answer your question with scientific confidence. I do have the strong feeling however that CCSVI is a very important in MS and a host of other diseases and conditions. 35 potential candidates were listed at ISNVD. The problem is we just don't know enough yet, but the science is very very exciting and it is clear that the many of the unknowns can be answered quickly with appropriate research. Like what is normal?
Neurologists, generally are culturally and philosophically not prepared for this new way of looking at and treating neurological disease. As an IR nurse you probably saw how the OB-GYNs reacted to the treatment of fibroids, and oncologists react with new interventions in their arena too. So be kind and gentle with your neurologist but have a healthy dose of skepticism too with what they tell you about MS or CCSVI. Read Marie Rhodes's book (http://www.CCSVIbook.com
). The MS drugs are associated with high morbidity and mortality. if your symptoms are mild and you can wait. do so for both DMD drugs and CCSVI treatment. there is a lot of research going on now and treatments will be better soon. educate yourself. Talk to your IR and other colleagues.
there is a wealth of good knowledge here and at CCSVI_tracking.com and on facebook. (CCSVI in Multiple Sclerosis and other pages). I'm sorry that you have MS and I hope that treating your CCSVI will help your symptoms should you choose that path. It helped me but the path is a rocky one now and best done in the context of a careful research setting or a cautious expert IR. we are pioneers. AS the luminary IR, Mike Dake, said recently in this interview. The association is undeniable but we need research to answer the big questions. http://abclocal.go.com/kgo/video?id=8596502