I just found this forum this AM. A quick background on me, I'm a father of six children, and husband to a great wife, married 20 years this July
. About a year and a half ago, was diagnosed with TM. Mild case, as I lost no major function, but had the typical numbness from lower rip cage down, and muscle weakness etc.. Almost full recover, except for the permanently damage nerves that must be causing my right leg to have that "Frost bite" numbing, burning tingling, restless leg thing going on. Also, have very annoying pulling/like a ball under my rip cage (lower ribs, left side), that makes life so much fun.
Shortly after the initial confirmation of TM via spine MRI, doctor did a brain MRI. The results stated "consistent with early stage MS". I and my typical stubbornness , refused the answers. I went for a second opinion. The second doc looked at MRI and said he saw nothing on the scan, and thought the other guys must be crazy. Well, turns out, the second opinion doc might not have gone through all the images, and just wanted me to feel better about myself, LOL. Don't know. Anyway, I took this great news, at that time, and went on with life assuming that I do not have MS. That was good enough for me. Except now....
Having no insurance, I'm kind of on my own. Even if it turns out I have MS, I can't do a thing about it. The reason I reached out here, was the little research I'm doing, keeps pointing me back to MS. MS hug, seems to fit the bill for the weird pull/ball under rib cage thing. The leg symptoms get really bad sometimes at night, I can't even sleep, and sometimes the depression, over-tired, beats me down. It's like you get these days where nothing makes you happy, and nothing matters. You just feel hopeless. I've had a strange twitch/tremor in my left thumb and finger, started yesterday and has been off and on since. Get's pretty consistent at times. I've had this twitching in my right arm/hand, legs, and even other odd places. Wife just says "vitamin deficiency". Well, that would be odd, as I take multi-vit everyday, along with fish oil, b12. Overall health was improving, even lost weight. I think that despite my efforts, I'm still feeling hopeless some days. I was just starting to feel more positive about life, and than the crazy little crap starts to act up again. Now, I just don't know what is next. Maybe, it isn't MS, and I'm just putting dots together that have nothing to do with MS or TM.
Long and short, why I am here, I have no health insurance. Do I really need to worry about MS? If the first doc was right, and I do have MS, not just TM, wouldn't it be much worse? I'm inclined to just ignore it all, and try to rise above these little troubles. However, being father of six, I have an obligation to assure that I can provide for them until they are all adults and on there own. To do that, I have to make sure MS doesn't get ahead of me, if that is what is really going. How do I even start with no money, no insurance, and a full plate?
I know, no one has the answers, but I thought sharing this here was a start. My family really isn't a support system, as they seem to think it is just me complaining ( I tend to share these little pains to my wife, who is most likely sick of hearing it). I don't think they are mean, or don't love me, but they have no clue, as this isn't something they can see or relate to. Plus, everyone has their own full plate to deal with. That pretty much leaves me to learn to suck it up and learn to ignore all this mess.
Sorry for the book long intro. Just a lot to get off my chest....
Thanks to anyone reading this.