Possible MS according to my doctor.

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Possible MS according to my doctor.

Postby teekay » Sun Jun 24, 2012 10:20 pm

Hello. My name is Tabitha. I'm 29 years old. I'm engaged and have 3 beautiful children and I'm planning to adopt my sisters newborn girl unless it becomes physically impossible to do so. I don't have medical insurance so I've been self pay for a while now. Only seeing the doctors that my PC tells me to see. I recently visited a rheumatologist because my doctor thought I might have rheumatoid arthritis. I'm currently waiting for blood test results. 

Anyway, at my last visit to my doctor, he said that he thinks I might have MS because of a few of my symptoms. I haven't even had the chance to tell him all of my symptoms but I hope to some day. I'd appreciate any thoughts you'd like to share :) Thank you!

My symptoms:

- When I stand up (whether it's fast or slow) I get a really strange sensation in my legs and head (almost like they're filling with air) and I feel like I need to sit as quickly as possible or I'll fall over. Sometimes I lose vision completely for a few seconds.

- Once when I was in Toronto with my fiance, I suddenly had the worst pain I've ever had in both of my legs. I could barely take a step without screaming in pain. It went away after about 3 days.

- Sudden random sharp pains in my joints.

- Severe itching and pain in random hand and foot joints that result in pretty bad swelling. The pain basically feels like the ache from leaving a body part in freezing water for too long.

- Severe heat intolerance. If I'm exposed to heat for too long, I get very dizzy, confused, my pain increases drastically and I feel like I'm going to faint.

- Random cold or wet spots on my skin. I'll feel something like a drop of rain hitting my forearm when there obviously isn't anything there.

- Random shocking feelings on my skin. I've been diagnosed with Fibromyalgia.

- Severely blurred vision that used to come and go but has been constant for months now. I feel like I need to open my eyes wider to see more clearly but it never works which then results in a headache.

- Sharp pain in the right side of my head. Always in the same spot.

- Auras in my vision, followed by confusion and memory problems.

- Horrible back pain... everywhere in my back. Diagnosed as degenerative disc disease.

- Large amounts of hair loss that luckily never seems to lead to bald spots.

- Random "numb patches" on my skin.

- Bad itching all over.

- Clumsiness when I walk. Suddenly veering to the right or left for no apparent reason. I can't walk with another person without running into them.

- Horrible pain in the soles of my feet when I stand or walk for more than maybe 10 minutes.

- I'm not sure how to describe this one but, sometimes when I'm sitting, I'll get that feeling you get when blood rushes back to a limb after the circulation has been cut off for a time. No matter how I readjust or move, I can't make it go away. I've also had this in my arms but only a couple times.

- Neck pain that feels like pain in a vein. Almost like it's more internal or something.

- Left and right sided chest pains that make me feel dizzy.

- Palpitations.

- Low AND high blood pressure.

- My resting pulse is almost always above 90.

- I used to pride myself on my spelling and grammar but lately I've noticed I'm forgetting the basics and I end up embarrassing myself.

- Sometimes I get a very odd sensation in parts of my body (most recently in my wrists) that almost feels like someone's wrapped their hand around my wrist and applied significant pressure.

- A blind spot in my left eye that is made worse by looking up, down, left or right without moving my head.

- The "pins and needles" feeling almost always in one body part or another. I get it in my hands a LOT. I hate this so much because it makes me not want to touch anything or I'll feel like I need to keep using lotion.

- Strange jerking of my muscles at any given time. Sometimes when I'm in bed (not asleep or falling asleep) my leg will suddenly jerk across the bed like I kicked it out when I didn't.

- Another hard one to explain… I'll be sitting in bed with my legs either crossed or in front of me and suddenly my torso will… "rock" backward or forward. I guess that would be categorized as involuntary movements.

- Horrible fatigue whether I sleep or not.

- Spots on my skin that when scratched hurt pretty bad for about 10 seconds.

- Pain on my scalp when I touch or move my hair. The best way to describe this is the pain some women get when they've had their hair up for too long and then let it down.

- Swallowing difficulties. I CAN swallow, but sometimes I have a hard time. For instance, when I eat a small piece of candy, I have to swallow like 3 times to get rid of the lump in my throat.

- Sometimes I can see AND hear my heart beat.

- Horrible shoulder pain and the inability to lift my left arm higher than my shoulder. This was diagnosed as bursitis in both shoulders. 

I guess my doctor will be referring me to a neurologist soon and I'm pretty worried but, I'll take things as they happen I guess.

It's nice to be here. I hope to make some new friends. :)
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Re: Possible MS according to my doctor.

Postby jimmylegs » Mon Jun 25, 2012 4:43 am

welcome to TiMS, teekay :)

if you want to look into any nutritional possibilities, i can help. i noticed some symptoms in your list that flag nutrient possibilities, and the fact that you mentioned having 3 children upped the ante, since childbearing takes a lot out of you, literally.

again, welcome to the forum!
my approach: no meds so far - just nutrient-dense anti-inflammatory whole foods, and supplements where needed
info: www.whfoods.com, www.nutritiondata.com
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Re: Possible MS according to my doctor.

Postby teekay » Mon Jun 25, 2012 7:56 am

jimmylegs wrote:welcome to TiMS, teekay :)

if you want to look into any nutritional possibilities, i can help. i noticed some symptoms in your list that flag nutrient possibilities, and the fact that you mentioned having 3 children upped the ante, since childbearing takes a lot out of you, literally.

again, welcome to the forum!


Thanks! :) I know my list of symptoms is pretty long but, it's what I live with on a daily basis. It's starting to freak me out a little bit. I just wish I knew either way. I think that would make me feel better. :)
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Re: Possible MS according to my doctor.

Postby want2bike » Mon Jun 25, 2012 11:15 am

No matter what name they might put on what you have diet is the key to all healing. Since you do not have insurance they are not going to be able to put you on their toxic drugs. Check out the different diets listed on this site. The body can heal itself it you give it the nutrients it needs. Dr. Swanks diet is a good place to start.

http://www.franksherwood.com/tnms.htm
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Re: Possible MS according to my doctor.

Postby FLJhawk » Mon Jun 25, 2012 2:48 pm

You certainly have some things going on. You might indeed have MS, but you have a lot of things that are not typically related to MS, so there may be many things going on with you.

I would suggest an immediate modification to your diet. You can research such diets here, as well as what supplements that you really do need to be taking. Jimmylegs is very helpful in advising you on supplements and recommending blood tests you can ask your doctor to do. You should also ask your doc about starting on LDN. It is very inexpensive, but most doctors don't understand it. You can research it here and advise him.

By watching your diet, taking the proper supplements, to include malic acid and LDN, you might do as well as you would if you went on a $3K/month MS drug.

I would not advise taking on an infant in your condition, but that is your call (and your fiancée), not mine.
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Re: Possible MS according to my doctor.

Postby jimmylegs » Mon Jun 25, 2012 4:13 pm

here's a link to some reading you might want to check out teekay - two pages of posts but i think you'll find them worthwhile

general-discussion-f1/topic19575.html
my approach: no meds so far - just nutrient-dense anti-inflammatory whole foods, and supplements where needed
info: www.whfoods.com, www.nutritiondata.com
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Re: Possible MS according to my doctor.

Postby lyndacarol » Mon Jun 25, 2012 5:47 pm

Welcome to ThisIsMS, Tabitha.
You are wise to make a list of all your symptoms. Your PC (GP, internist) can order tests to check many of these symptoms: thyroid hormone tests (TSH, free T4, free T3, reverse T3, and antithyroid antibodies) might explain your hair loss; liver panel might explain your bad itching. If your PC refers you to an endocrinologist for these areas of investigation, you might request a "fasting blood insulin test" (one of the least expensive blood tests available).
All the best to you.
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Re: Possible MS according to my doctor.

Postby bartman » Mon Jun 25, 2012 7:50 pm

Sounds like Lyme Disease, with co-infections of bartonella and babesia. Educate yourself about the biggest controversy in medicine in lyme disease and the difficulty in getting diagnosed, and the proper treatment. If you have possible MS, you have possible Lyme disease as both diseases have identical symptoms. If I were you I would find an llmd (lyme literate md) and start on antibiotics...because if you do have lyme and you start MS medicine which are immunosuppresant you will make it harder to ever get better. If the antibiotics make you sicker initially that is called a herxheimer and is a good indication you have lyme.

I would seriously contact someone from a lyme disease support group and learn about these infections as more and more people are realizing they have been misdiagnosed with MS and so many other autoimmune diseases. If you have any questions please ask, it's important to treat these infections aggressive and quickly as it often takes a long time to get better.

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Re: Possible MS according to my doctor.

Postby jimmylegs » Tue Jun 26, 2012 5:25 am

Human Neutrophil Calprotectin Reduces the Susceptibility of Borrelia burgdorferi to Penicillin
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1418918/
"Borrelia burgdorferi, the spirochetal agent of Lyme disease, is susceptible to killing by a variety of polymorphonuclear leukocyte (PMN) components. Some are most effective against metabolically active B. burgdorferi. The abundant PMN cytoplasmic protein calprotectin, elevated 10- to 100-fold in inflammation, inhibits the growth of spirochetes through chelation of the essential cation, Zn."
i imagine the body manages to do this more effectively when there's adequate zinc in the picture.. which we know is not the case for your average ms patient...
my approach: no meds so far - just nutrient-dense anti-inflammatory whole foods, and supplements where needed
info: www.whfoods.com, www.nutritiondata.com
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