I thought I'd better introduce myself. I promice none of my future posts will be this long!
My name is Laura, I live in California. I was dx in Nov 1998 and immediately started on Pred, then Solumedrol after I weaned off of Pred. Avonex followed but I quit that within a year. I've not been on meds since. Tried Marinol once or twice, hated it. I tried one Baclofen last week or so before bedtime, it seemed to help with the 'night stiffness' I get. I got up in the middle of the night and had absolutely no stiffness.
I found this site the other week as I was looking for LDN info. I have a dr. appt early tomorrow morning to see if I can get LDN. The doctor is only supposed to refer me to a Neuro (who I used to see, she dx'ed me), but I'll be bringing lit. to try and convice him to Rx it without referring me to her. I have a feeling she won't want to Rx (she was insistant that I go on avonex, not Betaseron only because she already had a patient on Betaseron. So I might be able to convince her with "I'll be your LDN guinea pig!"). Between the two doctors, maybe I can get an Rx for LDN. If not, I'll ask for Baclofen.
My major symptoms so far are: weakness in the left leg, tremor in left hand/arm, fatigue, spasicity, incomplete bladder emptying. I'm shopping half heartedly for a nice, pretty cane, for when I need it. I'm going to Universal Studios Hollywood next week (free tickets!) and you better believe I'm wheelchairin' it.