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PostPosted: Sun Sep 23, 2012 8:46 pm 
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Newbie

Joined: Sun Sep 23, 2012 8:30 pm
Posts: 4
Location: Pacific Northwest
Hello there!

My name is Heather and I am 24 years old, and live in the Pacific Northwest. I was diagnosed officially this May. A week ago I was finally able to start on Rebif. This was after my insurance company delayed and finally denied my request for Avonex.

My journey began last year in May, when I suddenly lost vision on my right eye. Not realizing it was neurological I went from optometrist to ophthalmologist and finally to a neurologist where I was told it was a case of optic neuritis. Which is where my MS journey began!

This is not the first time I have been sick however... in 2008, I was diagnosed with an extreme case of ITP (Idiopathic Thrombocytopenic Purpura). Over the years I have lost almost all of my friends because they just don't understand what it is to live with a chronic disease.

Today I had a break down whilst trying to inject myself and I realized I need to speak with people who live the same thing. So, hello!


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PostPosted: Sun Sep 23, 2012 8:57 pm 
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Volunteer Moderator

Joined: Sat Mar 11, 2006 4:00 pm
Posts: 7619
hello! you'll find plenty of support here. welcome to the forum :)

_________________
my approach: no meds so far - just balanced whole foods (partial 'paleo', much less outright elimination), science, supplements, & bloodwork
my regimen - www.thisisms.com/ftopict-2489.html
www.whfoods.com, www.nutritiondata.com


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PostPosted: Mon Sep 24, 2012 1:37 am 
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Family Member
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Joined: Tue Feb 16, 2010 4:00 pm
Posts: 87
Location: Ireland
Hi Heather

Quote:
Over the years I have lost almost all of my friends because they just don't understand what it is to live with a chronic disease.


Good friends are very important in supporting you in your bad times but these friends should take time to learn about and understand any chronic illness and then make allowances accordingly. It is a shame that your friends don't fall into this category but you will make new friends here as we are all in the same boat. Stay positive and don't let MS get you down. :-D

Gymbuff


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PostPosted: Mon Sep 24, 2012 5:16 pm 
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Joined: Thu Dec 22, 2005 4:00 pm
Posts: 1672
Welcome to ThisIsMS, Heather. We are glad you found us. You have a new group of friends here!

_________________
My hypothesis: excess insulin (hyperinsulinemia) plays a major role in MS, as developed in my initial post: http://www.thisisms.com/forum/general-discussion-f1/topic1878.html "Insulin – Could This Be the Key?"


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PostPosted: Tue Sep 25, 2012 3:45 am 
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Joined: Fri Aug 03, 2012 7:09 am
Posts: 32
Helllo Heather,

I am new here, but I know the people will try to help you, sure understand you and will offer the you the best advice or information they can.

Those of us who do it, know that injecting is no fun. Many day I have stared at that needle and wondered, sometimes for a few minutes, if I will be able to do it. Then I gather myself, and go ahead. It is hard to stay motivated and stick to the decision that was made not so long ago!

I hope you to learn to cope with this new bump life as thrown at you. Stay positive and don't let the MS dominate all aspects of your life. YOu are still the same you.

Best of luck to you.


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