So, it's been a couple months. It feels like more.
I knew nothing about neurological symptoms before diagnosis. Didn't know. Didn't have a reason to think I wanted to. Had I known, I might have bothered about a doctor about intractable hiccups, or wierd laughter, or numbness, or... a few years earlier. Since my first MRI I spent months obsessively researching MS. That has slowed down a bit now I've returned to work.
I didn't want to take meds, but I'm now seriously considering Avonex, pending good news re BG12. There are definitely research articles that show that interferons don't do much to slow disease progression. Against this, there is Prof. Goodin's article on mortality rates in the original members of the Betaseron study. Apparently, a statistically significant subset of the untreated group died younger from MS than those who were treated. Depressing.
Of course none of this information reflects the fact that the lifestyle choices were made more than 20 years ago. Prof Goodin's study doesn't seem to account for who smoked. It also doesn't reflect diet or vitamin D or other factors we now know to be important.
Currently, my initial relapse has much improved, but I'm living with heat sensitivity, fatigue, balance issues when I stop walking or turn corners or rise from a chair. I have an intermittent tremor in my right arm and what seems to be muscular weakness on the far right side of my right leg. It could be much worse.
I'm exercising. I'm taking every day B12, B1 Complex, Fish Oil, Melatonin (at night) Magnesium (at night) Zinc, Calcium, CoQ10, Vit D 6000 IU, Multivatimin, Inosine, low dose aspirin. Antioxidants seem the most promising, readily available, avenue of attack. If I can't get this disease cured, I can at least promote long term health.
I've given up dairy, cut refined sugar except for very dark chocolate, sharply reduced wheat intake and am eating lots of fish, fruits, nuts, berries, sweet potatoes, squash and brightly colored vegetables. I won't give up meat, but I'm building my diet from the attempt to take in as many different nutrients per day as possible.
I may well take helminths (worms) when my budget allows. I'm looking for a reputable source for estriol. I'm intrigued by the HPA axis dysregulation issue in MS but haven't found a way to treat it yet. I've done my best to improve sleep and cut stress, but I'm a lawyer.
This board and Pub Med and especially Pub Med Central have been the best sources of information available. Thank you.
Re CCSVI, I don't know what to think, except that I'm nowhere near ready to contemplate surgery of any kind. I've had bad reactions to anesthesia in the past. I don't know what causes MS. I just know I have something that matches that clinical picture and I don't want it to get worse.
So. I'll be around when I can. This is a good group.