Hate the wait

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Hate the wait

Postby hfbll013 » Mon Dec 10, 2012 9:54 am

This is all new to me, but I'm reaching out because I'm desperate for someone who understands. I will provide some background in hopes that someone might have insight on the situation at hand. I've been referred to a neurologist by my PCP, but couldn't get an appointment until 1/9/13, and the wait for answers is killing me.
So, here's the story:

- I'm a 34 year old otherwise healthy female
- In 2006, diagnosed at eye doctor with an enlarged optic nerve. Doctor did field of vision and pressure test for glaucoma, but never mentioned anything about MS.
- In 2010, I failed hearing tests at work for my right ear. Ended up at audiologist, then ear nose & throat doc, then for MRI, and finally at neuro for small white spots on MRI. Doctor asked if I was having any other symptoms other than the sudden hearing loss, and when I replied "no", that was pretty much it. He told me to get back in touch if I ever had dizziness, etc.
- October, 2012 = sudden tingling and numbness in right arm. Not associated with any certain movement, but just comes and goes. Not necessarily painful, but VERY annoying. Visited PCP, who referred me for EMG, which was normal. Follow up with PCP referred me for another MRI and re-visit to neuro, stating that he's suspicious of MS.
- All bloodwork is normal
- Only other strange sypmtoms are complete and total exhaustion, and "distraction" at work. I'm normally a high-performing individual, but suddenly find myself sitting and staring at my computer as if I don't know what to do, and by the time I get home all I want to do is crawl in bed.

Any thoughts or feedback? I feel very alone, and the few people that I've confided in don't seem to understand me. Thank you in advance for any help!!
hfbll013
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Re: Hate the wait

Postby jimmylegs » Mon Dec 10, 2012 10:16 am

you found a good place to sign up :) welcome

i have to run out but for starters the text and link in my 'signature' below will tell you how i go about all this :)
READ ME key info on nutrient targets - www.thisisms.com/ftopict-2489.html
my approach: no meds so far - just nutrient-dense anti-inflammatory whole foods, and supplements where needed
info: www.whfoods.com, www.nutritiondata.com
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Re: Hate the wait

Postby hfbll013 » Mon Dec 10, 2012 11:20 am

OK, thank you. I just feel like I'm going crazy waiting for answers. I figured someone on here has to have some sort of understanding, right??
hfbll013
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Re: Hate the wait

Postby jimmylegs » Mon Dec 10, 2012 12:10 pm

yes the waiting sucks. here's some reading for the meantime. info you are not likely to get from the neuro in january: www.thisisms.com/ftopict-2489.html

and some questions: what is your diet like? and, what bloodwork have you had done so far?
READ ME key info on nutrient targets - www.thisisms.com/ftopict-2489.html
my approach: no meds so far - just nutrient-dense anti-inflammatory whole foods, and supplements where needed
info: www.whfoods.com, www.nutritiondata.com
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jimmylegs
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Re: Hate the wait

Postby hfbll013 » Mon Dec 10, 2012 12:23 pm

My diet is reasonably healthy, but I know there is room for improvement!! The only bloodwork I had was what was required for my yearly physical (whatever the normal metabolic panel, etc, is...excuse my ignorance on the subject).
hfbll013
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Joined: Mon Dec 10, 2012 9:38 am

Re: Hate the wait

Postby jimmylegs » Mon Dec 10, 2012 12:58 pm

all right well there are some pretty common imbalances associated with many reasonably healthy diets. there are a wide variety of different dietary solutions for ms, lots of advice available on supplement regimens. i have tried to distill the available nutrition science down to key measurable targets at that link above. if you have access to a little more bloodwork the results should be telling.
READ ME key info on nutrient targets - www.thisisms.com/ftopict-2489.html
my approach: no meds so far - just nutrient-dense anti-inflammatory whole foods, and supplements where needed
info: www.whfoods.com, www.nutritiondata.com
User avatar
jimmylegs
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Posts: 9252
Joined: Sat Mar 11, 2006 4:00 pm


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