Diagnosed today and devastated

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Re: Diagnosed today and devastated

Postby lyndacarol » Tue Feb 26, 2013 7:26 pm

Lolls – If you like to read, start your reading with two books: Multiple Sclerosis: The History of a Disease by T. Jock Murray, OC, MD, and I think The Multiple Sclerosis Diet Book by Roy Swank, MD, PhD and Barbara Dugan is a good second book to read or even have. You may be able to get these through your local library.

Since I believe insulin is a major player in MS, I think you were wise to start the paleo diet – a diet that will not trigger insulin production. (By the way, insulin is known as a "fat-storage hormone;" your mention of "weight loss" indicates to me that you may have excess insulin.) Many people find that diet can influence the symptoms of MS. In my opinion, this means a low-carb diet -- remove all sugar (including beer, wine, etc. which have sugar), remove all artificial sweeteners, including sugar alcohols like sorbitol, xylitol, etc. (These promote insulin production, too.), remove all trans fats (These also increase insulin.), and white flour, white bread, white potatoes, white rice (in fact, all carbs so far as possible) from your diet.

My suspicion is that Fatty Liver Disease is also involved in MS, since visceral fat (belly fat) secretes cytokines (like poison to the internal organs), which lead to increased insulin, which leads to inflammation which leads to more visceral fat… And the cycle goes round and round. Diet is important; in fact, you may find the account of Dr. Terry Wahls and her dramatic improvement in MS interesting (http://www.TerryWahls.com).

All the best to you.
My hypothesis: excess insulin (hyperinsulinemia) plays a major role in MS, as developed in my initial post: http://www.thisisms.com/forum/general-discussion-f1/topic1878.html "Insulin – Could This Be the Key?"
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Re: Diagnosed today and devastated

Postby Lolls41 » Wed Feb 27, 2013 12:47 pm

Thanks a million yeah i belueve in the insulin theory also pity i didnt think about that years back. Delighted i had started duet before i even had any idea this was happening. As its part of life now. All came about from a disc injury from tennis match to two months later been diagnosed with this crap disease. I will get those books this week. Will prob have to get them from ebay as i live in ireland and prob not in library here.
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Re: Diagnosed today and devastated

Postby lyndacarol » Wed Feb 27, 2013 7:06 pm

Lolls –Since you mention that you live in Ireland (If you lived there as a child, I assume you received the BCG vaccine against tuberculosis), and since I believe that MS symptoms are caused, in large part, by excess insulin, I encourage you to push your GP to order a "fasting blood insulin test." (The optimal result should be 3 UU/ML or lower; my first insulin test result was 12 – later tests have never been below 9.)

I am on the mailing list of Dr. Denise Faustman, a Harvard University researcher working on a cure for type I diabetes. She has triggered increased insulin production from trial participants with previously non-producing pancreas. In her fall letter were links giving more information on her work: http://www.myfoxboston.com/story/192352 ... t-diabetes

Here is a Bloomberg article with more details: http://www.bloomberg.com/news/2012-08-0 ... or-tb.html

Dr. Faustman is also doing research on MS, but I do not believe that the BCG vaccine will be helpful against MS, as she believes – because of a friend's experience. My friend grew up in Ireland where she moved around often and attended several schools; a BCG vaccine was required at each new school (the BCG vaccine is required of school-age children in the UK)– she thinks she has received the BCG vaccine four times. She now has MS.

I think the increased insulin triggered by BCG, as Dr. Faustman has found it increases insulin secretion, will make MS worse (since I still believe the insulin/MS connection) . This vaccine uses attenuated (weakened), i.e., live bacteria. Is it possible that BCG (bacillus Calmette-Guérin) continues to live in the body and is NOT eliminated by antibodies, OR that the bacterium changed the pancreas into chronically overproducing insulin? I think this BCG vaccine could be responsible for many cases of MS because it increases insulin production.

By the way, T. Jock Murray is a Canadian physician (author of the first book I mentioned) and I believe his book is available in MANY countries and has even been translated into several languages.
My hypothesis: excess insulin (hyperinsulinemia) plays a major role in MS, as developed in my initial post: http://www.thisisms.com/forum/general-discussion-f1/topic1878.html "Insulin – Could This Be the Key?"
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Re: Diagnosed today and devastated

Postby Lolls41 » Sat Mar 02, 2013 6:01 am

Thanks again for very informative information. Yes i did have bcg as a child. I work in ed so havectested fasting glucose often as we get our bliods worked up regularily. Mine is always well below the limits so at least that is one good thing.

I had my first round of iv steriods over past three days. Defo got reluef from leg dragging but having a problem now with eye sight. Bit hazy and have developed styes on both eyes. Is this a sude effect of infusion or ms symptom. Feel clueless re all this.
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Re: Diagnosed today and devastated

Postby lyndacarol » Sat Mar 02, 2013 6:22 pm

Lolls – Just to clarify: the fasting glucose test and the fasting insulin test are TWO different tests. The insulin test was developed around 1950 (by researchers Yalow and Berson) and became commercially available in the 50s. It is not routinely done as part of a regular exam; at least in the US, the patient must specifically asked for the fasting blood insulin test.

It is good that your glucose level is below the cut off for diabetes (as I understand your sentence to mean), but the glucose level does not indicate or predict the insulin level.

Please be aware that IV steroids (a.k.a. glucocorticosteroids) raise the blood sugar level, which triggers the insulin level to rise in response.
My hypothesis: excess insulin (hyperinsulinemia) plays a major role in MS, as developed in my initial post: http://www.thisisms.com/forum/general-discussion-f1/topic1878.html "Insulin – Could This Be the Key?"
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Re: Diagnosed today and devastated

Postby Lolls41 » Tue Mar 19, 2013 3:16 pm

Can i asl when you day skeletal ms what do you mean by that?
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Re: Diagnosed today and devastated

Postby jimmylegs » Tue Mar 19, 2013 3:31 pm

while you wait for a reply you could visit the external web site that v linked you up to on the last page.
also v has posted proposed ms categories in various topics here at TiMS, so a quick site search would probably turn up a bunch of hits with the explanation you're after.
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Re: Diagnosed today and devastated

Postby euphoniaa » Tue Mar 19, 2013 4:04 pm

Lolls41 wrote:Can i asl when you day skeletal ms what do you mean by that?

Good question, Lolls!!! I have never heard of it and I can't find it in an online search.

I guess you are asking vesta:

vesta wrote:If this started after an accident you could well have Skeletal MS.
Dx'd with MS & HNPP (hereditary peripheral neuropathy) 7/03 but must have had MS for 30 yrs before that. I've never taken meds for MS except 1 yr experiment on LDN. (I found diet, exercise, sleep, humor, music help me the most.)
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Re: Diagnosed today and devastated

Postby jimmylegs » Tue Mar 19, 2013 4:16 pm

might need a new/diff search engine, e!
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Re: Diagnosed today and devastated

Postby vesta » Wed Mar 20, 2013 4:11 am

SKELETAL MS: A misaligned skeletal, bone or dental structure can actually restrict the free flow of cerebrospinal fluid which in turn can compress or impede venous blood circulation. Structural problems can be either congenital or developmental in origin (e.g. accidents.) Recent scientific studies have focused on the interdependent dynamic of brain "fluids", the blood and the cerebrospinal fluid (CBF) which bathes the Central Nervous System. Excess cerebrospinal fluid can actually "compress" or limit blood circulation, hence the interest of Chiropractors in adjusting the Atlas bone to assure proper CBF circulation. If the problem is SKELETAL, angioplasty would not be appropriate. In this case it is not a problem INSIDE the vein but OUTSIDE. Chiropractic, Osteopathic or Dental adjustment may suffice to release the brain fluids flow leading to CURE or CONTROL.

This comes from my article Five CCSVI MS Types to be found under the CCSVI thread. It is my terminology which is why you may not find it easily, however, it is perfectly valid as an idea.

MS Cure Enigmas.net
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Re: Diagnosed today and devastated

Postby euphoniaa » Wed Mar 20, 2013 4:22 am

vesta wrote:SKELETAL MS: A misaligned skeletal, bone or dental structure can actually restrict the free flow of cerebrospinal fluid which in turn can compress or impede venous blood circulation.

It is my terminology which is why you may not find it easily, however, it is perfectly valid as an idea.

MS Cure Enigmas.net


Ahhh, you made it up! :-D

I was wondering how that worked, since Multiple Sclerosis is a disease of the Central Nervous System and not the skeleton. Although plenty of us have skeletal issues along with MS, and the generic term "sclerosis" can be used in many other contexts, Multiple Sclerosis itself is damage to the nerves of the CNS.
Dx'd with MS & HNPP (hereditary peripheral neuropathy) 7/03 but must have had MS for 30 yrs before that. I've never taken meds for MS except 1 yr experiment on LDN. (I found diet, exercise, sleep, humor, music help me the most.)
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Re: Diagnosed today and devastated

Postby vesta » Wed Mar 20, 2013 4:32 am

Dr. Zamboni has discovered the problem – venous blood reflux or CCSVI – but not the sole solution. Detoxification and nutritional therapy coupled with circulation therapies and/or skeletal adjustments may suffice without taking the risk of angioplasty. MS is a blood circulation disorder (or perhaps cerebrospinal fluid circulation disorder in general) and only secondarily an auto-immune problem.
MS can be cured outright in some cases. For most it is a question of control - stopping or diminishing the progression. There isn’t a magic bullet, one-size–fits-all solution.
I've concluded there are 5 basic MS types, all of which lead to a reflux of venous blood into the Central Nervous System.
1) CONGENITAL vein malformations. 2) DEVELOPMENTAL vein malformations. 3) AGING vein malformations 4) SKELETAL – Cerebrospinal fluid pressure. 5) TOXIC MS.
As for the current categories of Relapse/Remit and the various Progressive MS's, I don't believe these properly describe the problem and certainly don't point to a solution. The various immunosuppressive drugs developed since 1990 are used only for the Relapse/Remit phase, so once you've hit the Progressive stage, you might as well listen to alternative ideas. And even in the early Relapse/Remit phase one should be warned that many of these drugs simply are ineffective, cause serious side effects and at least one (Tysabri) may lead to death.
CONGENITAL: This idea is favoured by Phlebologists and Dr. Sclafani. However, it doesn’t account for the epidemiological variations in geography, culture or gender. It certainly can’t explain the dramatic increase in Japanese MS cases over the past 30 years. However, obviously it can be one factor.
DEVELOPMENTAL: My beginning hypothesis was that stress (of many potential origins) damages the veins in the child's developing body so that once adult the veins can no longer accommodate the blood flow. Defects in the circulatory system impede if not outright block blood flow leading from the brain and spinal cord leading to MS "attacks" and subsequent paralysis. It is for this reason that MS first generally manifests during or after adolescence. Dr. Zamboni himself observed deformities in the veins in the back and neck of MS patients. These areas correspond to Acupuncture meridians which control blood/fluid circulation.
AGING MS: The third type develops with age. There is no reason why veins shouldn't harden and malfunction as a part of the aging process. When the valves in veins draining the central nervous system malfunction, blood backs up to injure the myelin sheath.
THE ANGIOPLASTY CURE has been suggested for these types of MS (Congenital, Developmental, Aging) characterized by varied vein malformations - stenosed (narrowed), twisted, exhibiting stuck or deformed valves, or just plain missing. The Italian phlebologist Dr. Zamboni launched the theory he named CCSVI. The treatment consists of threading a catheter through the affected vein and opening it with a “balloon”. Initially the Internal Jugular Veins, the Vertebral Veins and the Chest Azygos vein were treated. Other veins leading from the spinal cord are now treated as well. Development of the Intravenous Ultrasound has allowed Interventional Radiologists to see what is going on inside the vein, determine the appropriate size of the balloon to open the stenosed vein without scarring, and avoid various complications including thrombosis (total closure of the vein). Stents have been inserted into veins which collapsed after being opened, though now with improved procedures stent usage has become increasingly rare. (Dr. Sclafani believes the early 50% failure rate in the Jugular vein angioplasty occurred because the balloons were too small to open the veins sufficiently.) Without the Intravenous Ultrasound the Interventional Radiologist worked “blind”, unable to see if the balloon was too large which risked scarring the vein lining tissue (endothelium) which might lead to thrombosis. There have been cases where, after the initial “liberation”, the vein closed off again and each subsequent intervention led to more scarring and tissue damage. Some experienced little if any improvement. (Not all the veins leading from the spinal cord are treated.) Some found themselves in a worse condition after the angioplasty than before. (One woman reported that her veins shriveled up into useless dried out structures through which no blood could flow.) Presumably with experience and the development of new techniques and material the few early tragedies which have occurred can be avoided. (Already use of the IntravenousUltrasound has decreased the risk factor dramatically. Also, it must be said that resistance to the new technique by the Pharma Neurologist crowd forced many to go overseas for treatment. They were unable to get followup care once home, condemned for having defied “authority”. It would be difficult to know if the treatment itself was at fault or the negligence of the US and Canadian medical authorities.)
Some post-angioplasty MS patients have reported dramatic recoveries, often with stents inserted, at least 3 years after Angioplasty. They have been CURED. (I don’t know the longest post operative success story. Treatments began sometime in 2009.) The lives of some have been so transformed that they now wonder if they should declare themselves free of MS and therefore ineligible for disability benefits.
Nonetheless, while some have been apparently cured, the risks of angioplasty are real. Before rushing into the operating theater, consider first treatment of Types 4) SKELETAL and 5) TOXIC MS.
SKELETAL MS: A misaligned skeletal, bone or dental structure can actually restrict the free flow of cerebrospinal fluid which in turn can compress or impede venous blood circulation. Structural problems can be either congenital or developmental in origin (e.g. accidents.) Recent scientific studies have focused on the interdependent dynamic of brain "fluids", the blood and the cerebrospinal fluid (CBF) which bathes the Central Nervous System. Excess cerebrospinal fluid can actually "compress" or limit blood circulation, hence the interest of Chiropractors in adjusting the Atlas bone to assure proper CBF circulation. If the problem is SKELETAL, angioplasty would not be appropriate. In this case it is not a problem INSIDE the vein but OUTSIDE. Chiropractic, Osteopathic or Dental adjustment may suffice to release the brain fluids flow leading to CURE or CONTROL.
FINALLY THERE IS TOXIC MS.
I include in this category not only known toxins such as mercury in dental amalgams, aspartame, glutens and various food intolerances, but myriad microbes/viruses such as Mononucleosis, Epstein Barr, Chlamydia Pneumoniae, Lyme as well as various metabolic disorders such as toxic "gut" and diabetes. OK that's a big category. One might say I am being simplistic. BUT MAYBE IT IS JUST THAT SIMPLE. Whatever stresses the body in those individuals with a compromised vascular system may trigger the blood reflux into the CNS. Illness in childhood may damage the vascular system, stress including toxic stress may trigger the reflux. Toxicity itself may damage the veins. All these factors may stress the vascular system leading to a venous blood reflux. Detoxification, intestinal cleansing, and appropriate nutrition will reduce pressure on the vascular system as well as nurture the brain and heal nerve damage.
CURE: Some MS patients recover through diet cleansing and nutritional therapy alone. Some may have a "temporary" stress reaction to a toxic substance such as aspartame (or mercury in dental almagam fillings.) The reaction is "temporary" in the sense that once the toxin is removed, the MS symptoms disappear. I have even heard that removing glutens from the diet is sufficient to heal.
CONTROL: Dr. Terry Wahls (see You Tube Minding Your Mitochondria) presents another excellent example. She began her treatment by de-toxifying from the MS drugs which were poisoning her and then optimized her nutrition. Her recovery implies that her veins were not actually blocked, but tensed up enough to cause a reflux. Also, she stimulated her blood circulation by electrical stimulation of the bands of muscles on her back, in other words, the bladder meridian. Optimal Diet/Supplements serve three purposes. 1) to heal the vein walls themselves 2) to prevent stress on the vascular system which might lead to blood reflux and 3) heal damaged brain tissue.
In addition to nutritional therapy, most MS patients probably will require treatment to enhance blood circulation to prevent blood refluxes – massage, ayervedic massage, acupuncture, self acupressure, osteopathy, chiropractic, and swimming.
Any double blind study will have to sort out these various MS types before proceeding. If one has either Skeletal MS or certain forms of Toxic MS, angioplasty would be inappropriate. Opponents to the CCSVI theory find it too easy to denounce it as “unproven”. For me that is no reason to freeze up like a hedge hog and wait for Science to give me permission to take care of myself.
To make a long story short, Dr. Zamboni has discovered the problem – venous blood reflux or CCSVI – but not the sole solution. Detoxification and nutritional therapy coupled with circulation therapies and/or skeletal adjustments may suffice without taking the risk of angioplasty.

MS Cure Enigmas.net
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Re: Diagnosed today and devastated

Postby Lolls41 » Fri Mar 22, 2013 6:29 pm

Sorry for not replying sooner but didnt get a chance to get In here past few days. That sounds very interesting as after my back Injury i also developed Pneumonia as i got a cold trying tO swim off the injury as such and it led to very bad cold which turned out to be pneumonia. Working in an ed i probably picked it up at work and would normally have good enough immune sustem to fight it off but been injured i found it too painful to cough etc.

So ye would recommend a vist to a chiropractor to at least try it and see what happens!! Im skeptical as have seen at work a very injured patient coming in after a trip to chiro.

I am so willing to try anything right now as I am so well and feel that i want to catch this before it catchs me as such.
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Re: Diagnosed today and devastated

Postby vesta » Mon Mar 25, 2013 11:02 am

Hi Lolls41 I'm just getting over the flu and haven't returned yet to my site. An Osteopathic Dr is probably a better idea since I find chiropractic a bit rough. Insist that the musculoskeletal framework is considered in relation to brain/spinal fluid circulation. Ask for an analysis of how your injury impacted that circulation. I'll get back to you, I can see I'm not thinking too clearly
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Re: Diagnosed today and devastated

Postby vesta » Tue Mar 26, 2013 11:35 am

Hi Lolls41:
Check out the CCSVI thread, which includes CCSVI and CCVBP (upright doc for instance) also GOLD STANDARD TOOLS on CCSVI thread. Try to get help seeing how the disc injury altered the entire skeletal structure. At least begin to check out the information. Also NUCCA doctors who work on Atlas realignment.
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