confirmed,need urgent advice

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confirmed,need urgent advice

Postby melko321 » Mon Mar 25, 2013 8:32 am

Hi all, i just had an mri which confirmed lesions and thus MS, you can see from my previous post that it started with ONand corticosteroids fixed that problem, and I thought that was that,but a friend tells me that I must urgently report to a neurologist now that MS is confirmed. Is this true? Aren't I done with therapy for the time being, I received tons of medrol for my eye? Is there some medicine specifically for MS that I must receive ASAP or else.... My neurologist is far away and I was going to visit in 2-3 days, but if it is an emergency...
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Re: confirmed,need urgent advice

Postby Anonymoose » Mon Mar 25, 2013 8:51 am

Relax. There is no need to see your neurologist immediately. If you have MS, all the neuro is going to do is offer you dmds. Lots of us, including myself, have never touched a dmd or a steroid and we are doing fine (at least I am).

Use the time before seeing your neurologist to research the dmds and decide if you want to take one. Also consider alternative management regimens like nutrition. I've not taken a formal poll, but it seems like those who go with dmds have more issues and seem to progress faster. Just saying...

Keep calm and carry on. :)
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Re: confirmed,need urgent advice

Postby melko321 » Mon Mar 25, 2013 9:11 am

Thank you so much. It would take me a lot more money and effort to rush to my neuro tomorrow, plus I was afraid they will keep me in the hospital again.
You saved me,thanks.
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Re: confirmed,need urgent advice

Postby jimmylegs » Mon Mar 25, 2013 2:08 pm

agree, no emergency. 2-3 days is not a dealbreaker at all :)
READ ME key info on nutrient targets - www.thisisms.com/ftopict-2489.html
my approach: no meds so far - just nutrient-dense anti-inflammatory whole foods, and supplements where needed
info: www.whfoods.com, www.nutritiondata.com
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Re: confirmed,need urgent advice

Postby melko321 » Tue Mar 26, 2013 1:04 am

Forgive me for being annoying but every now and then a question pops up in my mind. How exactly will the neurologist know whether I should take those dmds or not? The MRI is done,it showed multiple lesions on the brain,one on the optic nerve probably due to the ON, and none on the spinal cord. The lesions are not new,thus they have been here a while.
I have done some research on those dmds and I have a feeling I will turn them down if the neuro offers. At least for as long as I'm feeling fine. For what reason should I even take meds? What are they supposed to do?
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Re: confirmed,need urgent advice

Postby NHE » Tue Mar 26, 2013 3:39 am

melko321 wrote:What are they supposed to do?


Supposedly... reduce the number of lesions, reduce relapse frequency, reduce progression of disability (though there's a bit of disagreement on that last one).

Here's what I did. I recommend going to each of the DMD manufacturer's sites1 and getting a copy of the doctor's prescribing information. The documents will have a full list of the side effects, benefits and pharmacology. Print out each document and read them with a pencil and notepad at hand. Look up each word you don't know in a medical dictionary.

1. http://www.avonex.com, http://www.rebif.com, http://www.copaxone.com, http://www.tysabri.com, http://www.gilenya.com, etc...
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Re: confirmed,need urgent advice

Postby jimmylegs » Tue Mar 26, 2013 4:27 am

they also in some cases restore imbalanced nutrient levels. personally, when i was looking at my $20,000 a year option, i chose to make some major modifications to my previously extremely nutrient-sparse diet, and buy a few supplements.
READ ME key info on nutrient targets - www.thisisms.com/ftopict-2489.html
my approach: no meds so far - just nutrient-dense anti-inflammatory whole foods, and supplements where needed
info: www.whfoods.com, www.nutritiondata.com
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Re: confirmed,need urgent advice

Postby melko321 » Tue Mar 26, 2013 5:11 am

Thank you for your responses. I'll google from now on, now I'll have the time. I went to my GP once again,she called my neuro and he will see me in about two weeks,so I guess I'm not an emergency after all.
Thanks for all the info you provide,guys. I'll come back when the neuro does his thing.
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