another newbie

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another newbie

Postby titchie » Tue Apr 02, 2013 8:04 am

Hi, I have ms for 16 yrs. The first 12 sort of iffy with just one lesion, but a big impact on my body. luckily this improved. now for the the last 4 yrs diagnosis with many. Have been given Rebif and inject with the 22mg as I can't take the 44mg too many side effects. I have a problem with injection site very sore, itchy, lumpy, after 4 years very very fed up with it, on a bit of a downer I am afraid. Have been thinking of stopping and giving myself a holiday from the injections. Will I get some horrible withdrawel problems?
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Re: another newbie

Postby jimmylegs » Tue Apr 02, 2013 9:10 am

hi t, welcome to the forum :) sorry i can't help with your meds question but you will find plenty of support here. again, welcome!
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Re: another newbie

Postby NHE » Tue Apr 02, 2013 3:09 pm

titchie wrote:Have been thinking of stopping and giving myself a holiday from the injections. Will I get some horrible withdrawel problems?


I was on Avonex for 10 years and stopped since my MS was progressing anyway. I did not experience any sudden rebound effect, but I have continued progressing. Everyone's course might be different though.

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Re: another newbie

Postby NHE » Wed Apr 03, 2013 3:50 am

titchie wrote:Have been given Rebif and inject with the 22mg as I can't take the 44mg too many side effects. I have a problem with injection site very sore, itchy, lumpy, after 4 years very very fed up with it, on a bit of a downer I am afraid. Have been thinking of stopping and giving myself a holiday from the injections. Will I get some horrible withdrawel problems?


Have your considered switching to Avonex? Since it's an intramuscular injection, it doesn't have the injection site reactions that Rebif and Betaseron have. The worst that I had in 10 years was a nickel sized bruise that cleared up in about a day.
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Re: another newbie

Postby titchie » Wed Apr 03, 2013 5:07 am

thank you, will look into Avonex, my medical support is rubbish, I have said how fed up I am no answers really just get on with it. So feeling a bit stranded.
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Re: another newbie

Postby jimmylegs » Wed Apr 03, 2013 4:22 pm

lots you can do with nutrition, if interested i can help :)
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